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^^^^^^WARM GREETINGS FROM^^^^^^^^^ As I sit here at Ivan's computer at 3 am, Ivan is finally resting after a couple of very traumatic days. After the News program on Monday, Ivan had some personal problems that needed attention after what was an exhausting day. I hope he doesn't mind, but I am going to tell you a little bit about our friend. First of all he has the most severe off times of anyone I have met. He has dystonia so severe all his digits and limbs curl up to the point that he has to sit like an Indian or yoga style (whichever is politically incorrect) on the floor. He has severe cramping of all of his muscles. He has severe festination. If any of you have downloaded the avi file from Pallidotomy.com he is more severe with his gait than that young man was prior to surgery. He is sometimes, shall we say melodramatic, however there is not a soul I know personally that shows courage on a daily basis the way Ivan does. He is also subject to this countries misplaced priorities. What are these eggheads thinking of when they appropriate fund for the endowment of the arts and not one cent has gone through for this most insidious prison for our brains. I don't want to hear any bull----- logic about how important the arts are. PPPPPPLLLLLLLLLLEEEEEEEEAAAAAAAAASSSSSSSSSEEEEEEEEEEE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Spare me the tired old lines about who draws the line on art being acceptable. I just don't see the logic behind supporting something so insignificant and benign. Why should we provide federal funding in a capitalist society for a private enterprise. Right now I think the Googenheim is some maneuver to dislodge the excess pork from the gluttons who serve in Congress. Ivan won't agree, somehow I think this opinion is a no brainer. Back to our friend. He tries insatiably to get things done on our behalf. He will not take no for an answer. He has tried for several weeks now to get one of the local politicians to attend the gala on Saturday in Falmouth, Maine. He finally got Tom Allen the first district Congressman from Portland to commit. He is one of two Democratic House members while we have two Moderate female Senators whom have big shoes to fill for George Mitchell and Bill Cohen. Ivan also wouldn't rest until he got the wording he wanted and worked so hard to pen on the Governors Proclamation. You see, Ivan is a survivor in the truest sense of the word. He speaks his mind, when he has overstepped he usually succumbs to politeness even if he does so stubbornly at times. Ivan is honest about his sexual orientation. I am sure some people can't get past that. Homophobics are alive and well in most locals in this country I don't hold it against him even if there is not a genetic disposition. Think about that next time someone stares at your pill rolling hands or your chorea like dance to the movement Gods. If you feel it is unfair that you are singled out because of something beyond your control, try and remember that next time you question a person's sexual orientation. I would invite anyone whom thinks a 13 year old with gay tendencies had learned behavior instead of a gene alteration or mutation. A little toleration can go a long way in keeping an already difficult existence alive and somewhat positive. Your List Friend Greg Leeman 37/7 created on the computer of Ivan Suzman 48/11 [log in to unmask] Portland, Maine land of lighthouses deg. F *********************************************************** On Thu, 9 Apr 1998 19:57:45 -0500 Ivan M Suzman <[log in to unmask]> writes: >^^^^^^WARM GREETINGS FROM^^^^^^^^^^ >Ivan Suzman 48/11 [log in to unmask] >Portland, Maine land of lighthouses 43 deg. F "warm" >*********************************************************** > >On Wed, 8 Apr 1998 09:43:10 CST Margaret Mates ><[log in to unmask]> >writes: >Ivan S. and Karen B.... are there any plans to duplicate and >>sell copies of your TV appearance as was done with the first >>TV appearance of Ivan??? I would certainly like to get a >>copy of this show also. Margaret Mates >> >Dear Margaret, > > Tonight my friend Nancy and I, and a painter named John,watched the >video together for the first time.. It is really amazing. First of >all, half-way through, enters Jon, Karen's husband. His emotions and >his honesty and coping mechanisms, and the shock at the deal of the >cards Karen has received are all wonderfully and openly shared. > Karen is just extraordinary! With unshakeable determinedness, she >doesn't let PD get in her way. She is planning on climbing Mt. >Katahdin in June!! She talks about SO many of her symptoms, >explaining how "intenal tremors" feel, how she got diagnosed, how >eating became impossible, how she tells EVERYBODY she has PD. Inform >and educate are two o fher key words. > Nancy laughed when once or twice she saw me give way to Karen >instead >of answering. Well, I figured, why be a control freak when it was >already my 2nd TV show. I did see my own facial mask for the very >first time. My mouth twists stiffly down into a growing frown, even >when I'm feeling no anger or sadness at all! I talk about how I was >diagnosed, and we plug the Udall bill and its need for funding. > Margaret, this TV show outclasses the 1st show, and NEVER deviates >from the topic of PD. The LIVE, called-in questions are amazing-- like >the woman who, after her husband's death, shares her posthumous guilt >feelings for having beenn too demanding on him, the woman who shakes, >scared to face the facts, the woman who wonders about how we PWP's >manage to socialize within a fearful and withdrawn society, the need >for support groups, > I highly recommend this tape, BUT attention folks, I am NOT able to >distribute copies this time around. I am tired this spring, and >muist save my energies for other important projects. >Give us Mainahs some time to pondah, and we'll figure out how you can >get >a tape. thank, Maragret!! I'm sure Karen and Greg will figure out the >answers. > >Yours, >Ivan >