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Folks: Sorry, I'll have to leave the list, but I'll keep in touch with the CARE Digest. I can't keep up with the volume of messages - especially since I also have a full time job. However, I've benefited from your expertise -- thanks a heap! Esther Abe CG for Davis 74/5 t 12:00 AM 4/7/98 -0400, you wrote: >There are 8 messages totalling 454 lines in this issue. > >Topics of the day: > > 1. Mirapex > 2. Kava and PD Drugs (2) > 3. Question > 4. feedback needed > 5. remission > 6. who makes the list > 7. Barb M.'s thoughts on April 11 > >---------------------------------------------------------------------- > >Date: Mon, 6 Apr 1998 20:25:02 EDT >From: Tenaga <[log in to unmask]> >Subject: Mirapex > >In the past I noticed some discussion of this list about a difference in some >of PD medications between those mfg. in Canada and those mfg. in USA. I am >interested mainly in Mirapex. Would like to have comments especially if there >is any truth to the statement. Thanks Y'All >Eldon Green > >------------------------------ > >Date: Mon, 6 Apr 1998 19:36:06 -0500 >From: Bryce Jones <[log in to unmask]> >Subject: Kava and PD Drugs > >My mother who has had PD for 8 years has suffered through substantial >depression and anxiety the last two years. Right now she is taking >Remeron for the depression (it has helped some) and small dose of >Klonopin for the anxiety. > >While I realize that Klonopin is much stronger stuff than Kava, I am >wondering how Kava interacts with typical PD drugs, if at all. >Kava is an herbal remedy that helps some with anxiety. >Thanks, >Bryce Jones > >------------------------------ > >Date: Mon, 6 Apr 1998 21:32:42 EDT >From: JON A MEYER <[log in to unmask]> >Subject: Re: Question > >On Mon, 6 Apr 1998 12:26:07 EDT craig n eggerman <[log in to unmask]> >writes: >>I have a question on behalf of my father (78/2 months). About 3 weeks >>ago he had an episode of being extremely hot, his vision blurring, and >>left side feeling tingly and numb. He had an ultra sound of his neck >>and those veins are surprising clear for a man of his age and weight. >>Yesterday during church he had another 'attack'. Same symptoms. Last >>time they changed his medication. (I do not know what he is on then or >>now. It is not Sinemet.) >>Does anyone know if this is another Parkinson symptom? > >Jean, >I work as an EMT on a volunteer ambulance service. If someone told me >those symptoms I would suspect a T.I.A. (like a mini-stroke). Questions I >would ask would be does he have a history of hypertension (high blood >pressure)? How long do the symptoms last. etc. >It seems that there might have been some suspicion in that direction as >they did an ultrasound of his neck veins. >Keep on the Drs. till you have an answer. > >Jon Meyer 41/2 ([log in to unmask]) > another Hoosier > >------------------------------ > >Date: Mon, 6 Apr 1998 19:23:44 -0700 >From: "J. R. Bruman" <[log in to unmask]> >Subject: Re: Kava and PD Drugs > >Bryce Jones wrote: >> >> My mother who has had PD for 8 years has suffered through substantial >> depression and anxiety the last two years. Right now she is taking >> Remeron for the depression (it has helped some) and small dose of >> Klonopin for the anxiety. >> >> While I realize that Klonopin is much stronger stuff than Kava, I am >> wondering how Kava interacts with typical PD drugs, if at all. >> Kava is an herbal remedy that helps some with anxiety. >> Thanks, >> Bryce Jones > >Schelosky L et al: >Journal of Neurology, Neurosurgery, and Psychiatry, 1995;58:639-640: >Kava, a tranquilizing herbal beverage popular in the South Pacific >and also sold in Europe, seems to aggravate PD by antagonizing >dopamine and should therefore be avoided by PD patients. Cheers, >Joe >-- >J. R. Bruman (818) 789-3694 >3527 Cody Road >Sherman Oaks, CA 91403-5013 > >------------------------------ > >Date: Mon, 6 Apr 1998 21:43:40 -0400 >From: Debbie White <[log in to unmask]> >Subject: Re: feedback needed > >My mother Joyce (68/14 months) is now up to 6mg Requip 3x/day (along with >10 mg. Paxil and 25/100 Sinemet 2x/day). She recently experienced red >swollen feet. She attributed it to Requip, but it then got better on its >own (without a drug adjustment). > >She, too, is experiencing more tremor and this seems to have started with >Requip. Before Requip she had occasional tremor in her left hand. Now the >tremor is more pronounced. > > > > >Debbie White >[log in to unmask] > > >> Ineed information from any and everyone that has taken requip. I am now >on >> 2.5 mgs and my hands and feet and ankles are swollen. I am taking it to >> control tremor but it seems to be exaccerbating the tremor noticibly. My >> doctor wants me to increse up to 3.0mgs before I see him again. The only >> other medication I am on Is one eldepryl a day. Did anyone have any >similar >> experience.? Does anyone have a suggestion as to how I should proceed. >I >> will be grateful for any input. > >------------------------------ > >Date: Mon, 6 Apr 1998 23:33:01 -0400 >From: "Camilla H.Flintermann" <[log in to unmask]> >Subject: Re: remission > >Don-- glad for the remission, and hope you continue to feel better. That >neuro of yours is one for the book! >Requip will be built up slowly--Peter is doing OK with it, has had some >wearing off but is now adding slowly again. His Neuro says the best dose >for someone who is on Sinemet is maximum 6 mg daily--those who are only >taking Requip may go as high as 24. Just don't get in a hurry, and listen >to Vivian and that nice doctor! >We YQ2... > > >>my computer has a week of remission al so i was taken of mirax misspelt now >>on requip and one other. so i should of paid more attion about what the >>family had to say. got to put on some wait and eat more even if vivian got >>to blind fold holed my nose to eat. i asked for his pics. he said he would >>think about it but want every one to under stand he is my friend not my >>nero. as not every one is close to him. said he can't get to close to his >>patients. guess he is right. don't know how long i will be on it. so some >>of you remind me how good or bad it is >> >> [log in to unmask] >> 73/26 lima,oh >> >> I.Y.Q. DON & VIVIAN >> LOVE OF MY LIVE -53 >> >> BEST MEDS FOR PD IS >> LOVE & HOPE > > > >*** *** *** *** *** *** *** *** *** *** *** *** > This is for YOU!! > > > ____ ____ ___ > ____( \ .-' `-. / )____ > (____ \_____ / (O O) \ _____/ ____) > (____ `-----( ) )-----' ____) > (____ _____________\ \____/ /_____________ ____) > (______/ `-.____.-' \______) > > > From Camilla [log in to unmask] > >*** *** *** *** *** *** *** *** *** *** *** *** > >------------------------------ > >Date: Mon, 6 Apr 1998 22:02:19 -0500 >From: Ivan M Suzman <[log in to unmask]> >Subject: Re: who makes the list > >Kees, and the gang, > >I'm real tired- A GOOD TIRED, THOUGH, after a wonderful 30 min TV show >today, with Karen and Jon Bardo. I don't know how on Earth I found the >energy, but thank you God--I did. > >As far as who can be the "listkeeper" of which states/cities /countries >are Proclaiming Parkinson's Awareness Daygoes, I was only suggesting >Helen because she's such a GREAT Udall Bill advocate. > >She just phoned me, and we both agree----Kees, THANK YOU for jumping >right in, and doing the work of listing the proclamations! GO FOR IT!! > >Ivan >^^^^^^WARM GREETINGS FROM^^^^^^^^^^ >Ivan Suzman 48/11 [log in to unmask] >Portland, Maine land of lighthouses 36 deg. F a little bit more >like spring >*********************************************************** > >On Mon, 6 Apr 1998 16:02:46 -0700 kees paap <[log in to unmask]> >writes: >>Hi Helen and other listfriends, >> >> >>In my enthousiasm I must have missed Ivan's suggestion that you should >>keep >>track of the activities. I'm sorry for my actions and I would love to >>give >>my list to you or anybody else who is willing to make this list. It is >>not >>my intention to do something which I shouldn't, so if anybody wants to >>take >>over, I will be happy to send the info I gathered:) >> >>Warm greetings from a happy Dutchman in Texas, 48/9, >>Sinemet 1x 62.5, Sinemet 3x 125CR, Permax 3x 1.0, Tasmar 3x 100 >> >>**** Life is a loan, to live is an art, to live happily is a gift, to >>give >>is to live, to love is to give and to live, to cope with PD is all, I >>thank >>God daily that He gives me this loan and I will pay him back*** >> > >------------------------------ > >Date: Mon, 6 Apr 1998 22:23:04 -0500 >From: Ivan M Suzman <[log in to unmask]> >Subject: Barb M.'s thoughts on April 11 > >^^^^^^WARM GREETINGS FROM^^^^^^^^^^ >Ivan Suzman 48/11 [log in to unmask] >Portland, Maine land of lighthouses 36 deg. F springlike >*********************************************************** >Dear Barb, > > You've touched on something real deep. I guess, dear barb, I am >playing my life by the rule that it really is OK to "celebrate" a joyous, >very FIRST-ever gathering of all of Maine's support groups. Just the >feeling of looking around a room of bravery and courage-- the willingness >to be VISIBLE--overpowers and outpaints the sadder, more grey tones of >Parkinson's. > > For me, my first April 11 is, I hope, a COMMUNITY day of hope and >reflection. This includes hope, sadness, acceptance, pride, courage and >maybe, wisdom; more importantly, I truly hope, EMPOWERMENT.. It's >suddenly eclipsed even my birthday in importance! or does THAT come with >the territory of being in my late 40's?? > > Anyway, dear california cybersis, I NEEDa celebration, sort of like >I DESERVE it, I EARNED it and I am gonna have a GREAT time, despite the >hardships, no matter what! > > I might even eat an extra hot fudge sundae just for YOU!! Or a >maple-flavored whoopee pie! > > Thank you for all you do for us.,,, > >i<<<BARB>>>s > >( Ivan gives Barb a cyberhug ) > >On Mon, 6 Apr 1998 22:12:35 UT Barbara Mallut <[log in to unmask]> >writes: >>Ivan, m'dear...... I've gotta call ya on your use of the term >>"celebrate" in >>reference to "World Parkinson's Day." It makes me nauseous to see >>the word >>"celebrate" when we're talking about this horrific disease. >> >>I looked up "celebrate" in the thesaurus, and was astounded to find >>hundreds >>of ways to express that word - and virtually ALL used it to define >>some joyful >>event. JOYFUL event? >> >>YIKES!! THAT'S not how I feel about PD or the events of the day on >>April >>11!!!!!! >> >>I see April 11 as a day for reflection, a day to honor those who have >>so >>valiantly and publicly carried the Parkinson's banner for ALL to see, >>instead >>of remaining invisible. I see the day as a collective, public >>SCREEEEEEAM of >>frustration made by people who otherwise would NEVER exhibit >>themselves in >>such a manner - people who were brought up by both parents and society >>to not >>"air their dirty linen" where the whole world can see it. >> >>By "going public," about having a terrible disease and calling the >>"public >>conscience" on the carpet by reminding that self-same public that once >>out of >>the closet, we're not going BACK - we're visible and we're going to >>STAY >>visible till there no longer is a reason to do so IS "airing dirty >>linen" by >>many. >> >>So Ivan, dear friend, I suggest you grab your thesaurus and come up >>with a >>replacement word to describe World Parkinson's Day, and when we next >>have a >>REASON to "celebrate" vis a vis PD, let's pray we'll be celebrating >>the CURE! >> >>Go get 'em, tiger! >> >>With love.... >> >>Barb Mallut >>[log in to unmask] >> >> >> >>---------- >>From: Parkinson's Information Exchange on behalf of Ivan M Suzman >>Sent: Monday, April 06, 1998 3:50 AM >>To: Multiple recipients of list PARKINSN >>Subject: House-Senate RESOLUTIONS-any other states? >> >>^^^^^^WARM GREETINGS FROM^^^^^^^^^^ >>Ivan Suzman 48/11 [log in to unmask] >>Portland, Maine land of lighthouses 34 deg. F overccst >>*********************************************************** >>MAINE House-Senate RESOLUTION (S. 868) >>************************************************************************** **** >>****** >>Dear Listmembers, >> >>Karen Bardo and I will be on WCSH-TV in Portland, Maine at 12:30 >>today. >>The RESOLUTION below will be mentioned, as will our APRIL 11 >>celebration >>of World Parkinsons' Day. >> >>Have any other states adopted Parkinson's Awareness legislative >>resolutions? >> >>Ivan >> >> >> >>On 20 Mar 1998 16:52:13 -0500 "Delfranco, Judi" >><[log in to unmask]> writes: >>>JOINT RESOLUTION RECOGNIZING PARKINSON'S >>>DISEASE AWARENESS MONTH >>> >>> WHEREAS, Parkinson's disease is a brain disorder that usually >>affects >>> >>>adults over 40, although it can appear in younger persons; and >>> >>> WHEREAS, Parkinson's disease, or Paralysis Agitans, is a >>devastating, >>> >>>painful and incurable brain disorder of unknown origin that disrupts >>>and >>>can end the lives of those who suffer from it as well as overwhelming >>>the >>>lives of their families and friends; and >>> >>> WHEREAS, more individuals suffer from Parkinson's disease than >>>multiple >>>sclerosis, muscular dystrophy and Lou Gehrig's disease combined; and >>> >>> WHEREAS, Parkinson's disease often takes an enormous emotional, >>>psychological and physical toll on the families surrounding their >>>suffering loved ones; and >>> >>> WHEREAS, Parkinson's disease appears eventually in approximately one >>>of >>>4 persons older than 80 years of age and in one of 10 persons older >>>than >>>60 years of age, thereby directly touching the lives of at least one >>>of >>>10 families in the State; and >>> >>> WHEREAS, according to the American Parkinson Disease Association >>>there >>>are approximately 1.5 million people in the United States diagnosed >>>with >>>Parkinson's disease, of which 7,000 or more are in the State of >>Maine; >>> >>>and >>> >>> WHEREAS, the symptoms of Parkinson's disease - stillness, tremors, >>>slowness, poor movement and difficulty with balance and speaking are >>> >>>often mistaken as a normal part of the aging process; and >>> >>> WHEREAS, the cause of the disease is unknown, and drugs can only >>>control >>>some of the symptoms of Parkinson's disease for a short period of >>>time; >>>and >>> >>> WHEREAS, the historic and crucial Morris K. Udall Parkinson's >>Disease >>> >>>Research Act of 1997, which would provide up to $100,000,000 of >>>funding >>>specifically for Parkinson's disease, has recently been passed by the >>> >>>Congress after a courageous 4-year struggle by Parkinson's sufferers >>> >>>usually too sick to go to Washington; and >>> >>> WHEREAS, the entire congressional delegation from Maine was the >>first >>> >>>delegation from any state to join in cosponsoring the Udall >>>Parkinson's >>>legislation; and >>> >>> WHEREAS, April 11th has been proclaimed to be World Parkinson's Day, >>>a >>>day for all to recognize the need for more research and help in >>>dealing >>>with the devastating effects of Parkinson's disease; and >>> >>> WHEREAS, increased education and research are needed to help find >>>more >>>effective treatments and ultimately a cure for Parkinson's disease >>and >>>to >>>provide more effective support programs and services to Parkinson's >>>disease patients and their caregivers and families; and >>> >>> WHEREAS, the leading public officials of the State and leading >>>officials >>>in the State's medical community are now called upon to aid in >>>reversing >>>the invisibility and voicelessness of its citizens suffering from >>>Parkinson's disease; now, therefore, be it >>> >>> RESOLVED: That We, the Members of the One Hundred and Eighteenth >>>Legislature, now assembled in the Second Regular Session, recognize >>>the >>>month of April as Parkinson's Disease Awareness Month throughout the >>> >>>State of Maine; and be it further >>> >>> RESOLVED: That a suitable copy of this resolution, duly >>>authenticated >>>by the Secretary of State, be transmitted to the American Parkinson >>>Disease Association, Maine State Chapter. >>> >> > >------------------------------ > >End of PARKINSN Digest - 6 Apr 1998 >*********************************** >