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originally posted 1998/03/21 ---------------------------------------- note for those members who don't track these things: i moved residence in december 1997 to canada after living in bermuda for 17 years... and i am proud to say i have finally met my first parkie in person... ---------------------------------------- From: janet paterson Date: 10 September 1997 Subject: Re: Ron Barber's post of 8/7 ---------------------------------------- hi faye you wrote: >I pray for continuation of our list discussions >with the love and friendship of a family atmostphere >(thanks, Janet .. what a great idea!) you are most welcome! i guess the significance of the sharing that goes on here is much more important to me on this beautiful but limited island because of what is not here: no neurosurgeons no neuros of any kind no 'movement disorder clinics' no support groups i have YET to meet a parkie in person [after nine years!] i have admitted to being spoiled by living on my own enjoying the luxury of solitary mulling time but the only reason that luxury doesn't become a prison is that i have 'you lot' through the miracle that is the internet we each one of us are individuals with our own chemical 'stew', granted, but also with our own unique talents or strengths i think the dynamic of this medium plus all of our strengths pooled together is the miracle of our time if i had pd and still lived here but with no internet in existence ... i can hardly bear to think about it i think i can declare without hesitation the only reason i feel so comfortable with having pd and so optimistic about the future is due to this miracle >If that is not possible for all, >then perhaps we can maintain at least >the polite and collegial atmosphere >of people working together toward a common goal >of surviving, fighting and learning as much as possible about PD.. :) i'm glad that ron felt 'safe' enough with us to express his frustration this isn't a 'public forum' it's a group of people brought together by an uncommon condition which is progressive, incurable, and degenerative we are not the average joe or jane on the street we and the people we care about have been through and are still going through a test by fire at times we need to share what we are really feeling because this may be our only outlet this may be the only group we have access to who might understand being a family doesn't mean 'happy days' being a family doesn't necessarily mean being 'polite' being a family doesn't mean we're 'on the prowl' or 'lookin fer luv' it means facing ups and downs together for the long haul knowing that we can just be us no act no pretense knowing we're not alone and if that's not a miracle i'll eat my hat your cyber-sis janet ---------------------------------------- janet paterson 51/10 - sinemet/selegiline/prozac almonte/ontario/canada - [log in to unmask]