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Bill,

You are so right. Bruce Anderson and I had a good dialogue going last week
off list. He challenged me to go onlist. I have been extremely busy between
work, starting up the nonprofit and try to titrivate my medications. Bruce
was right in that he said they will yes to death but don't always follow
through. He is right!

For just one brief period let's forget about any preconceived notions we
have as it relates to political persuasion. Economics 101- If we spend
between $10 Billion dollars a year on Parkinson's treatments and lost
productivity it would take a 100 years of $100 million dollar appropriations
just to catch up to the 1st years expense of treatment. So far every year
you only spend $100 million, you get another $9,900,000,000.00 in the red.
Therefore, are you ready for this?  We would be $99,000,000,000.00 more in
debt after a decade. Bled enough already? Why don't we complain about this?
Am I naive in thinking if we tell people this they would not be upset enough
to say loudly WHAT ARE WE DOING?????????????????????????

Bruce also said that one of the programs I was speaking about was just a
drop in  the bucket.  I agree partially, but any money that is spent on this
program (National Endowment for the Arts)when we have people suffering and
struggling with chronic diseases is just beyond comprehension.
We always say that this is a great country.  I am patriotic, however, it is
a great country built on the belief that the electorate will hold the
government to high standards.  This government was developed before the
advent of TV, the modern media and the substantial lobbying groups that
organize to make the decisions for us.  Because in a capitalist society we
are effected by money.  It is pure and simple. Why does AIDS get 41 times
the funding with only 300,000 more afflicted?  Organization, mobility and
strong vocal cords all built with money.  Why does MS get six times the
funding while they have less than 1/2 as many sufferers?
$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$
$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$
$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$
How do they get that money they are more organized, mobile and vocal.

It will probably continue as long as we let it. You have to ask yourself, it
is right to give money for programs that don't return any monetary value
while people suffer daily financially and most of all physically and
mentally with chronic illnesses?  Chronic illness that costs people their
livelihood, ability to work and to socialize. And one more time with
feeling: It continues to put this country further in debt both economically
and socially.

I agree again with Bruce after experiencing World Parkinson's Day and having
our Rep. Thomas Allen tell me while avoiding any eye contact that he would
check on the status of appropriations for the Udall Act. That struck a nerve
with me.  I looked him straight in the eye and said, Tom that's not enough.
You not only should fight with your soul for this fight, but with every
fiber of moral energy that you can muster to change the priorities of
Congress. Now I know I am probably too much of an optimist, but I believe in
a free society, we do in fact make the decisions when we want.  We have let
the extremist on both sides of the aisle run Congress for far too long.  It
is time we really make some noise with our raspy, low volume and monotone
voices. Everybody open your windows and scream, "I'm mad as hell and I'm not
going to take it anymore.

Regards,
Greg Leeman 37/7