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Rita, m'dear... Ya really struck a chord within me with your comment "Today is as good as it gets." My immediate reaction was "That's SOOO true!" That reaction was instantly followed by "Today is as good as it gets TODAY!" THEN... considering the volatile nature of PD... the "ok for now, worse in an hour, so-so in 45 minutes, and really lousy in 2 hours," action of this disease, it seems to me we are in a constant state of internal upheaval and change. Despite all that, MOST of the time (depending upon the time of day, the quarter of the moon, and over vagaries such as whether it's been a good hair day or not..) <grin> I STILL usually feel while "Today IS as good as it gets.... TODAY," that tomorrow or next week, or maybe next year it WILL be better. Not necessarily cured... but "better." Errrrrr... but my preference is SOONER, rather than later!!! Barb Mallut [log in to unmask] ---------- From: Parkinson's Information Exchange on behalf of Rweeks Sent: Tuesday, April 21, 1998 7:38 PM To: Multiple recipients of list PARKINSN Subject: Re: An idea for new device: Ken As much as I may have been bothered by the physical symptoms at various times, the mental games that are played by this disease are so much greater........ The stress on a marriage and a family have such a tremendous impact on all of us. I think one of the things that makes us so invisible...one of the things that makes this danged thing so frustrating.......is to have to deal with it 24 hours a day for the remainder of one's life......and have someone say "You look normal". ......how do you program those symptoms when we have tremor/dyskinesia masked? How are you every going to create a program that will express the impact of the disease on the person just diagnosed who has "only a tremor".....We need to make the folks holding the money bags to understand that this is BIG IMPACT from day #1 not just when medication fails.. I had "only a tremor "for 30 years and thought that was the only thing that was wrong! We need awareness of the impact of this disease from 10 years prior to diagnosis...not just someone to experience 10 minutes of dyskinesia. I am having a very good couple of weeks(my husband is in ICU after surgery but that was all planned and non-emergency;new grandson is 1 month old; mother is in a new and better nursing home situation, my meds are almost working).....so don't think that I am depressed as write this.........today is as good as it gets! Rita