Hi Barb,
Would you mind sending me your brochure. I would like to use it in our
educational material in our non-profit. This reminds me I haven't received
a response from the nationals on the request for any materials they could
provide our local non-profit. I have written all them requesting any
materials that they may provide or any advice they may be able to give. The
response after a month is NO RESPONSE! Maybe I'm being a little impatient.
It just seems although they are working on our behalf to make a difference,
they seem to do this with indifference to us. Its sort of like Bruce
Anderson's recognition that the representatives will yea all they can and
then that is it. Well, enough of that already.
Could you also send me a phone # so I could talk with you and pick your
brain on what might be an appropriate next move to keep some momentum going
with organizing. I would also encourage anyone on the list to state their
opinions on this idea or any other ideas floating around inside the damaged
squash of a PWP.
If we wait for others to do our work it may get done when Parkinsonian Hell
Freezes over. Or when Parkinsonians Freeze.
Now is the time for action!!!!!!!!!
Greg Leeman 37/7
-----Original Message-----
From: Parkinson's Information Exchange
[mailto:[log in to unmask]]On Behalf Of BBrock9404 (by way of
Camilla H.Flintermann)
Sent: Monday, April 27, 1998 9:52 AM
To: Multiple recipients of list PARKINSN
Subject: Udall Info/ suggested changes
BARB___I just found I had NOT sent this several days ago! Sorry! Will check
on Pell.
***********
Barb-- a gtreat idea--just a couple of tiny suggestions for wording. whixh
are enclosed in brackets:
q Is a progressive degenerative{ and at present incurable }neurological
disease.
q Major symptoms are tremor, stiffness and rigidity, slowness of movement,
{and the person is affected in many ways, head to toe}
q Is {probably} significantly under-diagnosed.
Famous People Living with Parkinson's
Pope John Paul
Billy Graham
Janet Reno
Muhammad Ali
Johnny Cash
Morris K. Udall
{isn't another Senator--I think Claiborne Pell--affected?}
The Problem
In 1997, the Morris K. Udall Research and Education Act was enacted and
authorized $100,000,000 a year as a timely recognition of the huge potential
in this field and as recognition that we as a society cannot continue to
take
a reactive, rather than a proactive stance. To date, the Act has not been
funded.
Support is needed to fully fund this important initiative now. While many
with Parkinson's cannot, you can make your voice heard. Signing this
petition and writing your U. S. Senators and Representative to ask for full
funding for Parkinson's research and education NOW will benefit not only
those
already diagnosed, but countless others in whom the death of the dopamine
producing cells of the brain that are responsible for the ability to move
has
already begun.
Whether we like it or not, we are all at least indirectly affected by
Parkinson's fiscally. It is thought that all of those fortunate to live
long
enough will have some symptoms of it. Investing in Parkinson's NOW is an
investment in the future.
_________________________
Barb Brock 53 cg Art 56/1 year
