Print

Print


On 05/03/98 Marvin Giles wrote:
>
>I read with growing fear about the idea that Parkinsons
>was going to change me from the lovable, friendly person that
>I am to a raving, self-centered, blank faced husk that nobody
>in their right mind would want to have anything to do with.
>
Marvin and All:

Well into our 53rd year of marriage, and our 13th post-diagnosis year with
my husband's PD, I can report that his personality has not changed to any
significant extent beyond what increasing maturity normally brings.

I'm not sure, however, that these last few years of increasing caregiving
responsibilities haven't changed mine a bit in the wrong direction. While
my husband tends to keep his problems to himself rather than to be a
"nuisance", my philsophy is to get my frustrations out in the open with
some degree of emotion and heat. It seems, as your wife observed, Marvin,
the personality we started with tends to become more exaggerated as PD
progresses.

None of that applies, however, when the PD burden includes the sadness of
dementia and the increasing loss of the original personality. So even on
the bad days, I am very grateful that the essence of the man I married in
1944 is still there, even though his body cycles through the days sometimes
functioning, sometimes wildly flailing about, and sometimes frozen and
unable to move without my help.

I've learned that it takes a person with great strength of character and
considerable bravery to endure PD gracefully. It seems to me that describes
most of the folks here online.

Martha Rohrer  (CG for Neal, 78/13)
[log in to unmask]