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I had a problem with what was said about the surgeon's 20+ hour SEARCH for the
source of the one PD patient's PD before FINALLY putting in the brian-stim
device.

This was described in a brief statement (so I'm aware we don't have the whole
story) when relating the story of the surgeon's nearly 20 hour dystonia
surgery's 'hunt 'n peck" method of locating the cause of the patient's
dystonia. That seems a logical way to find an UNKNOWN source of a problem, and
the cause and the source of the patient's dystonia WAS unknown.

The thing that got me about the brain-stim surgery in reference to the one PD
surgery performed by this neurosurgeon was that the MD "hunted" throughout the
PD patient's brain, probing away for over  20 HOURS till she found the source
of the patient's PD (while the patient was on the operating table!)

Admittedly, I'm no expert on neurosurgery!  I've only talked to a couple of
Parkies who've had brain stim operations.   However, from having had a
pallidotomy myself, I KNOW my neurosurgeon had a VERY, VERY good idea "BEFORE*
 my operation where he was going to find the source of my PD.  AND once the
pre-surgical MRIs had been done the surgeon was able to zero in with
remarkable accuracy and ZAP that PD lesion to oblivion in a matter of MOMENTS,
rather than HOURS.

Soooo.... last nite's program  had me wondering when I heard the PD brain stim
performed by the neurosurgeon  in the broadcast because from what I HAVE heard
and read about the PD-related brain stim surgery, indicates to ME that
surgeon's are pretty darn familiar with the location of PD before going into
the living brain of a patient and operating.  This familiarity comes from
extensive pre-op imaging... plus, I'd thought the location, if not the cause
or the cure for PD is pretty well known.

Having "mouse problems" today, and I'm awaiting my initial meds of the day to
kick in and am kinda rambling.  I'm hoping  ya all can translate my scattered
thoughts into something a bit more cohesive.

Barb Mallut (of the rambling mind)
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From:   Parkinson's Information Exchange on behalf of Camilla H.Flintermann
Sent:   Saturday, May 02, 1998 5:59 AM
To:     Multiple recipients of list PARKINSN
Subject:        Re: Nightline

Nightline was about a married couple of brain surgeons--she placed an
electrode in the brain of a young woman with severe dystonia--with good
results immediately post-op. She is the only surgeon in the US to do this
op fior dystonia, and this was onlt her 2nd time doing it!  He removed an
abnormal cluster of vein from the brain of a teenager, to stop her
seizures--also successfully.  The only mention of PD was that the woman had
once done an op for pd--didn't say what, but probably  similar to the one
shown.  The focus was on the incredibly complex lives of the couple and
their family.  (We always tape Nightline, and watch it over breakfast, as
they have some very good programs.)


>I just heard that ABC' Nightline show tonight will be on brain surgery.
>
>Pallidotomy?  Thalomotomy?  DBS?  Something else?
>
>Haven't checked.
SNIPPED

  Camilla Flintermann, CG for Peter 79/8
  Oxford, OH
  [log in to unmask]
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