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hi again, stefan! you wrote: >Hello PD readers , had some files deleted >but I am here and ready to talk. >My name is Stefan Fox and I am a strength & endurance trainer >doing consulting for the Montreal General Eating Disorder Clinic. >I have relations who have PD and now the will allow >me to try my knowledge and contact for supplementation >with them to see if it may help. >I am no expert but , I work with some very unique people >who are the cutting edge in athletic human performance. >I feel my access to things may (I hope ) help. >Presently I am working with a mineral composition >that increases muscle conductivity. >and starting to work with NADH. >I would like to talk about these areas and get feedback >Stefan Fox i gather that you lost some of your e-mail messages but i do recall your writing in to the list the first time about a week ago since i didn't hear back from you then, i will assume you lost my reply to you i have repeated your original message below, along with my reply for your records i am sorry to hear that you now have more than one relative with parkinson's disease - is there a high incidence of parkinson's in your family? have they tried any supplements? when you say you are starting to 'work with' nadh what do you mean? are you taking it yourself? or are you giving it to your relations with pd? you mention 'muscle conductivity' - what is this function and how would it relate to parkinson's disease? since you mention feedback once again i'm still curious as to what you mean - feedback about parkinson's? in what way? janet ------------------------ Subj: Re: New group member. Date: 98-05-24 03:24:15 EDT From: [log in to unmask] (Janet313) hi stefan you wrote: >Hello to all, I am new to the group and >would like to enquire for some information. welcome to our cyber-family, stefan! with 1600 caring and knowledgeable members worldwide, and mailing list archives dating back to its start in nov 1993 you have tapped into an incredible resource! please, ask away! >First off , I am a strength and endurance trainer working >with some of the best athletes in the country. how interesting! those of us suffering with this movement disorder are pretty familiar with demands on our strength and endurance 24 hours a day, 7 days a week, 52.3 weeks per year, 365 days per annum >Why I am on the list is simple, I have a relative >with Parkinson and would like to help. your relative is lucky to have you! please give us more details as to your relative's symptoms.... medication levels... male or female... age of diagnosis.... was the diagnosis of pd made by a neurologist or a specialist in movement disorders? >I have access to product which few people work with >and would like feedback as to their potential. i'm afraid i'm at a loss to give you any feedback... what do you mean by access? which products do you mean? >Does any one has documents on NADH and treatments? we have a lot of information in our list archives on nadh and similarly marketed products feel free to do a search there: http://new.parkinsons.org.uk/index.htm >I am using presently a mineral compound >who's basis is muscle conductivity - >I believe this might be of use - >since it allows for a optima mineral >medium for electrical transfer . how are you presently using this compound? has your relative tried it? why do you think it would be of use with pd? i'm not cognisant of the finer chemical details here but i'm sure that the medical experts here who are members of our cyber family will have some thoughts to offer as well as our own resident dietician, kathrynne >Also has anyone ever used Inosine and / or creatine monohydrate. >Inosine is a food substrate which works directly with the mitochondria >for oxygen replenishment and muscle strength/endurance. i don't know if this type of thing is helpful for a neurological condition... we generally have discussions on brain chemistry! maybe you could search the archives for this as well... >Creatine monohydrate is close to Inosine in that it creates >a higher octane fuel for cellular function -- it also may increase >cell fluid volume and muscle strength if used correctly. again, an archive search may be helpful here i have just reposted the instructions on searching the archives how long have you been a member of our list family? it might be useful for you to do a search at PubMed as well there are more than 9 million medical studies on record there... their url is http://www.ncbi.nlm.nih.gov/PubMed/ >I eagerly look forward to any feedback or questions i will just as eagerly look forward to hearing from you about your relative - our new parkie sibling! being diagnosed with an incurable and degenerative disease can be devastating, to say the least: so i am glad your relative has your support, especially now, as a member of this list! since we consider ourselves a cyber-family your relative [and you] now have 1600 more relatives! from your cyber-sibling janet janet paterson aka calendar control supervisor 51/10 - sinemet/selegiline/prozac - [log in to unmask] quotations: http://newww.com/cgi-bin/do_cal?c:newvoice pwp event calendar: http://newww.com/cgi-bin/do_cal?c:pwpc