Hi Hans, You got it right, we go for it, but... ....You and other dutch listfriends must go for it too, go to the politic parties, explain them our needs, our costs and how many people suffer from our disease. I saw a new estamation of patients in The Netherlands : 45,000. That is almost 0.3 % and this average is used all over Europe for the newest estamations for the number of patients. Let's assume that the real average is 0.25. Multply this average with the population of the USA and you have the estamation of the USA. Isn't that frightning ? In Europe the numbers will get as high as 1 million patients. With the upcoming babyboom it's everyones interest to find a cure as soon as possible. So make sure that the people wake up in Europe too!! warm greetings, Kees