Margaret Tuchman, Phil Tompkins and myself have spent a good part of the last month trying to answer this question. We "know" that the numbers often stated by the NIH (400,000) are much too low, and we have been trying to find the epidemiological research and statistics to back up our gut feelings. It was our hope to make these statistics available on the list and on the Parkinson's Alliance Web site, so they could be used when writing letters, contacting politicians, news sources etc. We had hoped the hard data would support estimates like those recently posted on the list by Ivan and Dan. Unfortunately it doesn't. As Phil stated current studies on the prevalence of PD have focused on only small, local populations. It is not valid to generalize the total number of PWP in the country based on these studies. Studies using death certificates also greatly underestimate the total. We could not find any nationwide epidemiological studies of PD. In our research we came across nationwide surveys for many other chronic conditions and diseases - diabetes, heart disease, ulcers, even conditions such as "dry, itching skin" and "trouble with bunions," but never for Parkinson's. We have to ask WHY! We are working on our final report of what we were able to find on the prevalence and incidence of PD, the economic costs, and the estimates of recognized experts. It will be posted on the list and the Parkinson's Alliance web site soon. In the meantime I am posting our summary sheet, on a separate file. While it is not all we had wished for, we hope this will be of some help to people, and will give us some undisputed, documented facts to back up our case for full funding of the Udall Bill. If anyone has additional statistics, either for the U.S., other countries, or worldwide numbers, please share them as well. Linda Herman [log in to unmask]