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hi all rick and i agreed to share this dialogue with the list janet >Subj: Re: Help and info for pd friend of friend - alarm bells >Date: 98-06-19 11:57:15 EDT >From: Janet313 >To: [log in to unmask] > >In a message dated 98-06-19 11:24:44 EDT, you write: >>Hi Janet, >>Your response brought up a related issue with me. I just visited >>my neurologist yesterday for a medication check and we talked >>about young PWPs--he sees about 4 of them including me. He >>contends that YOPs "decline" faster than older Parkinsons people. >>I am not sure if that's just his experience with his patients >>(excluding me) or whether there's some basis in fact for this view. >>I'll be damned if I'm going to start projecting my imminent demise >>just because of something a doctor says!! Your experieince >>is clearly not following my doc's opinion. >> >>Rick 47, 6 months or so > > >hi rick > >and... absolutely! > >as one who has suffered with gallstones for 8 years >which were misdiagnosed [and treated] >as nerves, stomach ulcers, lack of self esteem, and infectious hepatitis, >in that order > >and also as one whose father's throat cancer >was brushed off as a bad cough for six months > >i have to admit to a certain cynicism >when it comes to the 'doctor as god' medical training >that seems to have been rampant in the past >[and seems to be declining at present] > >your doctor's comments that younger parkies decline more quickly >has not been borne out by what i have read > >i believe that yoppers tend to have the 'rigidity type' of pd >[which is the 'type' more suitable for pallidotomy] >rather than the 'tremour type' >and that they [we] are more prone to clinical depression than oopers [?] > >it's also likely that yoppers are more prone >to have developed pd as trauma-related >[i suffered a head injury and a pesticide exposure in the same year >in 1981 when i was 34, and noticed the beginning symptoms >three years later] >rather than as a part of general aging and deterioration >[if everyone lived long enough, they would all develop pd] > >but if there's any one thing that i have learned about pd >is that it is as individual as the body-bag [!] >that it moves in with > >we all have our own unique bio-chemical 'signatures' >as unique as our fingerprints >and the chemical imbalance that is pd >is equally varied in its manifestation of symptoms >and its response to pharmaceutical chemicals > >i refuse to listen to anyone, expert or no, try to forecast the future >none of us are in the driver's seat and none of us have a map >but i have complete faith in the bus-driver > >which is not to say that i can't make the trip >as positive and as rewarding as i can >for myself and for others > >your cyber-sis > >janet > >ps >whew >you must have hit a nerve! >would you mind if i posted this to the list? >i think our dialogue is important enough to share a new voice: http://www.newcountry.nu/pd/members/janet/index.htm pwp event calendar: http://newww.com/cgi-bin/do_cal?c:pwpc 51/10 - endocarb/selegiline/fluoxetine - [log in to unmask] janet paterson, eic, ccs