hi it has been a long time since i've written or chatted,I was trying to get away but the truth is there is no way to get away. i DON'T WANT TO SOUND dEPRESSED but I am not as up as usual .iLife keeps going on but nothing changes and I realize I am expecting something it's like always waiting for a package.iThis is not fair we deserve a miracle.Let's put our spirts together let's try heaven instead of washington. every sun. aft, at three pray for a cure for ten minutes.why not? Ruth Spielberger -----Original Message----- From: Automatic digest processor <[log in to unmask]> To: Recipients of PARKINSN digests <[log in to unmask]> Date: Monday, June 01, 1998 11:07 PM Subject: PARKINSN Digest - 1 Jun 1998 >There are 18 messages totalling 457 lines in this issue. > >Topics of the day: > > 1. Need help surfing > 2. chit chat 2 > 3. Internet Message (in the subject line?) > 4. Washington full, any suggestions? (2) > 5. lost again (3) > 6. e mail > 7. Non PD fact and comment > 8. breathing problems and bloodpressure > 9. Kava - herbal product > 10. New member > 11. New Member > 12. Blood Pressure,Salt,PD > 13. Breathing problems-new ? (2) > 14. Need Source of Leather Sole Slippers > >---------------------------------------------------------------------- > >Date: Mon, 1 Jun 1998 16:50:09 EDT >From: William Heitman <[log in to unmask]> >Subject: Re: Need help surfing > >In a message dated 6/1/98 2:35:15 AM Central Daylight Time, >[log in to unmask] writes: > ><< > Barb Mallut ("cat mama" to Scooter 'n Buzzy) > [log in to unmask] > >> >Barb, >Yikes, that kisser swipe hurt... yelp!, ike! ike! ike! > >Sometime in DC remind me to tell you about Tinkerbell and the two Icabods. > >WHH > >------------------------------ > >Date: Mon, 1 Jun 1998 15:56:50 -0500 >From: Nita Andres <[log in to unmask]> >Subject: chit chat 2 > >Darwin, I forgot to put your name on this. > >I received J R Brumans CSR-then there was Barb Mullets NIH and Research >post. Janet Petersons calenders and other notices. > >It doesn't take long to get through the messages. The Calenders. If you >look for good you will find it. > >Nita ANdres >[log in to unmask] > >------------------------------ > >Date: Mon, 1 Jun 1998 17:40:01 EDT >From: Bonnie Rowley <[log in to unmask]> >Subject: Re: Internet Message (in the subject line?) > >To those using "Internet Message" in the subject line, > >I don't want to belittle anyone, but that subject line is so broad that it can >refer to every subject on the list. Please be more specific with what your >topic is really about. > >Thanks > >Bonnie >daughter of Jim76/2.75 > >------------------------------ > >Date: Mon, 1 Jun 1998 17:37:43 -0700 >From: ERVIN J MCCARTHY <[log in to unmask]> >Subject: Re: Washington full, any suggestions? > >Barb, be sure to advise them to have $100,000.00 stuffed in their pockets. > >Ervin > >-----Original Message----- >From: Barbara Mallut <[log in to unmask]> >To: Multiple recipients of list PARKINSN <[log in to unmask]> >Date: Monday, June 01, 1998 10:24 AM >Subject: Re: Washington full, any suggestions? > > >>Kees.... >> >>Ya might give Bill 'n Hilary a call and see if the Lincoln Bedroom's >>available a the White House.... <smile> >> >>Barb Mallut >>[log in to unmask] >> >>---------- >>From: Parkinson's Information Exchange on behalf of kees paap >>Sent: Monday, June 01, 1998 7:07 AM >>To: Multiple recipients of list PARKINSN >>Subject: Washington full, any suggestions? >> >>Hi listfriends, >> >>many of you I hope to meet soon, at the PAN forum in Washington. I will >>represent the Waco supportgroup here in the heart of Texas. I have one >>problem/question. Hotel Washington appears to be full in that period. Any >>suggestions for a neighbouring hotel? >> >>Kees Paap > >------------------------------ > >Date: Mon, 1 Jun 1998 17:54:11 -0400 >From: Don <[log in to unmask]> >Subject: lost again > > as lot of you know i am 74/30 i try to do what is right a darin hawkins >post has me mixt up. i don't wgen to email,put on post or to reply to one >or all so when i do wrong just let me know as of now i am having lot of >trouble in under stand lot of things even vivian is worred about me. at >times i can take folks complaing other times no or just don't under stand >so i again i hope i did not offend any one i.y.q. > >------------------------------ > >Date: Mon, 1 Jun 1998 19:15:16 EDT >From: Janet Paterson <[log in to unmask]> >Subject: Re: lost again > >hi cyber-dad-don > >>as a lot of you know, i am 74/30 >>i try to do what is right, > >and as long as you try, that's all that counts >whether you are 'successful' or not > >>but darwin hawkins' post has me mixed up. > >one of the blessings of this list >is that we are all 'cyber-family' members with equal voices > >so if darwin feels like complaining about anything, he is free to >and if other list-members feel like complaining about darwin, they are free to > >we are all entitled to our own opinions >and we are all free to express them > >>i don't wgen to email, put on post or to reply to one or all >>so when i do wrong, just let me know. > >you have done nothing 'wrong' >and i am sure that virtually all the other list members >would agree with me > >>as of now, i am having a lot of trouble understanding a lot of things; >>even vivian is worried about me. >>at times, i can take folks complaining; >>other times, no, or I just don't understand. > >pd tends to heighten our emotional reactions to everything >but there is nothing 'wrong' with that... > >>so again, i hope i did not offend any one > >...and there's absolutely no need >to apologise for anything > >>i.y.q. > >I.Y.Q.2! > >your adopted cyber-daughter > >sis > >janet paterson aka calendar control supervisor >51/10 - sinemet/selegiline/prozac - [log in to unmask] >quotations: http://newww.com/cgi-bin/do_cal?c:newvoice >pwp event calendar: http://newww.com/cgi-bin/do_cal?c:pwpc > >------------------------------ > >Date: Mon, 1 Jun 1998 19:13:47 -0500 >From: Nita Andres <[log in to unmask]> >Subject: e mail > >Don, you never offend anyone-don't worry. Everyone loves to hear from >you. >Nita Andres > >------------------------------ > >Date: Tue, 2 Jun 1998 00:42:10 UT >From: Barbara Mallut <[log in to unmask]> >Subject: Re: Washington full, any suggestions? > >Ervin... > >Heck... I'm gonna tell Bill since his gang is taking so >darn long to get the Parkinson's research money >into the system at the NIH, that we've decided to >charge 'em interest on it. At the rate it's going, THAT'LL >mean there'll be multi-millions MORE available for >PD research when the funds are FINALLY released. > >*@^!((*&& politicians! > >Barb Mallut >[log in to unmask] > > >---------- >From: Parkinson's Information Exchange on behalf of ERVIN J MCCARTHY >Sent: Monday, June 01, 1998 5:37 PM >To: Multiple recipients of list PARKINSN >Subject: Re: Washington full, any suggestions? > >Barb, be sure to advise them to have $100,000.00 stuffed in their pockets. > >Ervin > >-----Original Message----- >From: Barbara Mallut <[log in to unmask]> >To: Multiple recipients of list PARKINSN <[log in to unmask]> >Date: Monday, June 01, 1998 10:24 AM >Subject: Re: Washington full, any suggestions? > > >>Kees.... >> >>Ya might give Bill 'n Hilary a call and see if the Lincoln Bedroom's >>available a the White House.... <smile> >> >>Barb Mallut >>[log in to unmask] >> >>---------- >>From: Parkinson's Information Exchange on behalf of kees paap >>Sent: Monday, June 01, 1998 7:07 AM >>To: Multiple recipients of list PARKINSN >>Subject: Washington full, any suggestions? >> >>Hi listfriends, >> >>many of you I hope to meet soon, at the PAN forum in Washington. I will >>represent the Waco supportgroup here in the heart of Texas. I have one >>problem/question. Hotel Washington appears to be full in that period. Any >>suggestions for a neighbouring hotel? >> >>Kees Paap > >------------------------------ > >Date: Mon, 1 Jun 1998 20:51:37 -0400 >From: "p. l. maddux" <[log in to unmask]> >Subject: Non PD fact and comment > >Fact # 1--Per Forbes magazine , 40% of all internet traffic either >originates or terminates in the state of Calif. > >Fact # 2-- Barb Mallut lives in Calif! > >Comment--I wonder if there is any relationship between these two >facts,LOL or HiHi as we used to say on ham radio. >I emphasize, just kidding Barb. > >Lanier Maddux > >------------------------------ > >Date: Tue, 2 Jun 1998 03:35:39 +0200 >From: Hans van der Genugten <[log in to unmask]> >Subject: Re: breathing problems and bloodpressure > >Sun, 31 May 1998 18:53:14 EDT "M.Dawn Legan" <[log in to unmask]> >wrote about breathing problems: > >>It seems that as time approaches for next PD meds, I become aware of my >>breathing. I wouldn't call it "shortness of breath"; it's more a thing of >>becoming aware of breathing deliberately -- pulling air in & pushing it >out. >>What is this? >>M.Dawn 55/6 > >AND on another occasion M.Dawn Legan wrote: > >> I'm wondering if some you have had fluctuating blood pressure due >> to the PD or its meds. My doctor is speculating that some of my low >> energy problem could be related to low blood pressure, and is >> recommending salt tablets. I can't find these, but am filling >> capsules with table salt. Can someone, perhaps our nutritionist >> Katherine, tell me, in terms of fractions of a teaspoon, what the >> recommended intake of salt per day is, and what would be a toxic >> level? > >Hello M. Dawn, > >I would like to suggest, that BOTH problems (breathing and energy) are >related to the low bloodpressure. > >Low bloodpressure can be caused by PD itself and/or by PD-meds or both. >Also there is something called "static hypotension" (=if you suddenly stand >up after having been laying down, or if you suddenly stand up straight after >having been bending over, with some people (not-PD related) this causes a >sudden drop of the bloodpressure). Any physician can do a simple test to >measure if someone is sensitive to "static hypotension". Low bloodpressure >on it's own or both above mentioned reasons for a lower bloodpressure >combined, could IMHO lead to the energyproblem. The energyproblem of course >can also directly be caused by PD itself. (And: bloodpressure-problems are >more frequent in the starting- or adjustingperiod of a new med.). > >The breathing: if the bloodpressure is low or suddenly drops, the transport >of oxygen relatively isn't sufficient. This relative lack of oxygen sets off >an alarm, that says: more oxygen needed!!! So naturally you start deeper >breathing to take in more oxygen! > >As for the possible solution: >IMHO the extra salt-intake won't give you a permanent positive result. >If your kidneys are oke they will just get rid of the surplus of salt above >the daily needed uptake just as fast as you take it in! As to the suggested >more or less drinking of water: if you need water, you'll get thirsty and >drink; if you don't need water, you won't get thirsty and you don't have to >drink!! As you suggested, you better don't take my word for it, but ask >Kathrynne Holden or your own dietitian. >Keep in mind that a change or adjustment of your meds might have a positive >result; also keep in mind something besides PD might cause the problems: >e.g. chronic bronchitis or an allergy. > >Consult a qualified physician before making any changes in your meds!! > >Hope this helps, Hans. Hans van der Genugten <[log in to unmask]> > >------------------------------ > >Date: Mon, 1 Jun 1998 22:03:30 -0400 >From: Sid Roberts <[log in to unmask]> >Subject: Kava - herbal product > >Contraindicated! >There has been much publicity lately for Kava, a newly popular herbal >product that is being praised for its ability to relieve anxiety and >insomnia. The Wall Street Journal has called Kava the "Next Herbal Star." >Tests have supported claims made for Kava. Be warned,however. Do not take >Kava if you have PD for it may cause an increase in PD symptoms such as tremors. > > > > > > __________ > > Sid Roberts 68/3 <[log in to unmask] > Youngstown, Ohio > >------------------------------ > >Date: Mon, 1 Jun 1998 22:03:32 EDT >From: Sue Whitmore <[log in to unmask]> >Subject: Re: New member > >Hi Gladys, > >Welcome to the list >Sue W. > >------------------------------ > >Date: Mon, 1 Jun 1998 22:05:34 EDT >From: Sue Whitmore <[log in to unmask]> >Subject: Re: New Member > >Hi Danny, > >Welcome to the list. You will find it to be most informing and lots of >support. >Sue W. > >------------------------------ > >Date: Mon, 1 Jun 1998 22:38:37 -0500 >From: Phil Tompkins <[log in to unmask]> >Subject: Re: Blood Pressure,Salt,PD > >Bent Willow wrote: > >> Sodium is a normal body electrolyte that is *decreased* by excessive >> fluid intake. Contrary to what you have written here, sodium helps >> to *retain* fluid - hence the understanding that too much salt >> increases blood pressure by increasing fluid volume. > >Yes. But I think the person who raised the original question was >advised to take salt tablets without being told what quantity or any >maximum. I was referring to what can happen when you overdo it. >Like when you drink sea water. > >Phil Tompkins >Hoboken NJ >60/9 > >------------------------------ > >Date: Mon, 1 Jun 1998 22:38:37 -0500 >From: Phil Tompkins <[log in to unmask]> >Subject: Re: Breathing problems-new ? > >William Heitman wrote: > >> catastrophize??? >> >> izzataword? > >Yes. It's what a catastrophile does. ;-) > >Seriously, though, it can be scary to feel the start of a new >symptom, such as slight difficulty breathing. And imagination >inspired by anxiety can go to extremes (picturing oneself in a >respirator). It's the opposite of denial, which is what I do. >(What, me shaking? Doesn't everybody?) Maybe "don't catastrophize" >is too easy for me to say. > >Phil Tompkins >Hoboken NJ >60/9 > >------------------------------ > >Date: Mon, 1 Jun 1998 23:09:43 EDT >From: Nancy E Yarrison <[log in to unmask]> >Subject: Re: Breathing problems-new ? > >Hi Phil. I'm a relatively silent newer member( my mom has just been >diagnosed) anyway I like the word catastrophize, it made perfect sense to >me. >Keep up the good work I am learning so much from this list and am trying >to get my Mom on the computer and on this list. > I get afraid she'll just accept the pd symptoms as they come and fade >fast, I hope she'll realize that she needs to fight back and can fight >back. >take care >nancy y > >------------------------------ > >Date: Mon, 1 Jun 1998 23:14:30 -0400 >From: Judith Richards <[log in to unmask]> >Subject: Re: lost again > >Don wrote: >> as lot of you know i am 74/30 i try to do what is right a darwin hawkins post has me mixed up. > >Don, > Post whatever you want, whenever you want, and however you want, and >don't worry about it. You are a treasure and an inspiration, and I'm >ALWAYS glad to see something from you. > >Judith >-- >Judith Richards, London, Ontario, Canada >[log in to unmask] > >------------------------------ > >Date: Mon, 1 Jun 1998 23:31:26 EDT >From: John Dempsey <[log in to unmask]> >Subject: Re: Need Source of Leather Sole Slippers > >I am presently wearing a pair of leather sole slippers purchased at Brooslin >Shoe store in Springfield Ma. They are L.B. Evans slippers and have been >available for years at Brooslin's at 455 Sumner Ave., Spfld. 413-732-0465. If >you are unable to >acquire a pair in Toronto, I would suggest that you give the Brooslin shop a >call as they have been handling Evans slippers and can probably help locate a >store in Toronto. DEMPSEYJJD@ AOL.COM " JACK DEMPSEY" > >------------------------------ > >End of PARKINSN Digest - 1 Jun 1998 >*********************************** >