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 Mary and I have collaborated on the following letters.  To
 avoid overload, I have decided to release them one at a time.  This is
 primarily for those who could not make the DC trip.


19 Jun 98


O'Fallon,  IL  62269

Dear Senator Moseley- Braun,

Although we met only briefly in your outer office, we are grateful for the
very helpful attitude and efforts of your knowledgeable aid, Mr. Jake Jones.

We are asking for your commitment to getting the full $100,000,000.00 in
Parkinson's directed research funds as soon as possible.  These funds were
authorized last year in the Morris K Udall bill.

Our visit the afternoon of 16 Jun 98, was to expedite life and money saving
research.  We found your office PD friendly, Mr. Jones understood the
importance of our message.  To people with Parkinson's Disease (PWPs),
caregivers (CG--families), and the United State's economy, this is no small
matter.

Enclosed please find our briefing book, a copy of which we promised to Mr.
Jones.
The important points we discussed:
1. Perhaps a million human beings afflicted with PD, (in this country alone)
live strange and uncomfortable lives--every day, all day. The daily function
charts record my days. After a few years, PD and current therapy produce
dyskinesias (involuntary movements), "off time", pain, and disability.

2. The NIH seems to be thwarting the legislative will of Congress.  We stated
our belief and showed evidence that the NIH is reporting "PD related funds" in
its dollar estimates for PD research.  We spoke of the difference between
"Parkinson's related" funding and real PD research money.  We requested that
you write to Representative Porter and Senator Specter, asking them to help
you rectify the situation.  Enclosed please find sample letters with suitable
wording.  (also given at our meeting)

3. PD is an expensive disease costing 13.6 million dollars a day (direct
taxpayer costs--more in total economic costs).  I hope the life salary charts
are instructive.  I felt myself particularly lucky in this regard.  I had
great parents, a benign if somewhat "nerdy" raising, and a great education.  I
also had priceless experience.  (See the Webpage copy at the end of the book)

When I finally had to give up my USAF career, I was a "troubleshooter"-putting
back together, a poorly managed office at Mt Home AFB.  I loved it!  I had
finally arrived at the place where I could use my education/experience to save
Big Bucks for Uncle Sam.

I have no way of showing that.

Please let us know if I/we can be of further assistance

Best regards,


e-mail- [log in to unmask]
Time is money.  Time is life.
End Parkinson's Disease, now.