 |
 |
This message is in MIME format. Since your mail reader does not understand this format, some or all of this message may not be legible. ------ =_NextPart_000_01BDA467.467E8388 Content-Type: text/plain Rosemary, You definitely made an excellent point there. Back when we were really pushing for the Udall Bill, I made an attempt to get a message to Madonna (who is a big fan of Ali's), to see if she might say/do something in regards to PD. Now that's one person who knows how to get attention. I had posted a message to some Madonna fan-club newsgroup, and this one guy, who supposedly could get a message thru to her (altho' I think at that particular time she was in Europe looking at houses), and he said he would forward my request. Whether it ever got to her or not, I have no idea. I never heard anything about it, so I'm assuming probably not. I also tried contacting Annette Funicello (who has MS, and who sells a line of collectible teddy bears on the shopping channel QVC, some of the proceeds of which go to this organization she set up to help fund neurological disease research). I emailed the one show host who had hosted the her teddy bear show the day before, and she also said she would forward my request to Annette. Basically I had asked for whatever support/publicity she could put to bear on the Udall Bill issue. In this case, I believe the message got to her, but I don't know what the response was. I agree heartily that we have to bring PD more into the general public consciousness. Maybe I should get someone to make a recording of a "rap" song/poem that I had written a couple years ago, called YO PD! (It's an intentional pun). hahaha! But really, I think your ideas were excellent, that our national groups should consider similar ways to gather attention to PD. Maybe we shouldn't use the exact same methods as the others have, it might draw more attention if we come up with something unique, but the general idea is a good one. I think aiming some of the effort at the younger crowd would be beneficial too. When I was first researching my condition, before I or the doctors knew what it was, I looked up my symptoms in an old medical reference book that my parents had (it had been published probably in the late 60's or near there). When using my pd symptoms as a reference, the book led me right to PD, the only problem was the book described it as a disease of the elderly, and went on to detail it from there. At the time, having no idea that PD could strike younger people, I thought, "Well, guess that's not what I've got cause I'm not near that age group." (I was 27 at the time). I don't really think things have changed much, i.e., most of the general public has no idea that pretty much any age can get it. Alot of people too I think consider it a relatively benign disease, because the symptoms (at least for the first few years) are pretty well masked by the drugs. There is definitely alot of education to be done, as well as just general advertising of pd. I think something shocking would be effective (something totally out of line with the "elderly" image of pd). Maybe an MTV video. Maybe we could enlist Beevis and Butthead. Now that would be different! That might get some attention. Wendy Tebay ------ =_NextPart_000_01BDA467.467E8388 Content-Type: application/ms-tnef Content-Transfer-Encoding: base64 eJ8+Ig4UAQaQCAAEAAAAAAABAAEAAQeQBgAIAAAA5AQAAAAAAADoAAEIgAcAGAAAAElQTS5NaWNy b3NvZnQgTWFpbC5Ob3RlADEIAQWAAwAOAAAAzgcGAB4ADgApABIAAgBEAQEggAMADgAAAM4HBgAe AA4AKAAKAAIAOwEBCYABACEAAABDNzNDNDE5RDlDMEZEMjExOUE3QTAwMDBGODA0NUE0NwARBwEE gAEAGgAAAE5hdGlvbmFsIFB1YmxpY2l0eSBmb3IgUEQAJgkBDYAEAAIAAAACAAIAAQOQBgAADAAA IAAAAAIBCRABAAAAaAgAAGQIAABkDQAATFpGdVFJcA4DAAoAcmNwZzEyNf4yAP8CBgKoBesCgwBQ AvIJAgBjaArAc2V0Mp8GAAbDAoMOUBHbMSAHEy0CgzMDxRPZRwnwZXZ6YQKDNARHCFUHsgKDNZEV N3BycRKgQ2gN4IhhZ28CgH0KDQjP7QnZOxr/DjA1AoAaMA5i5Qtgbg4QMDMVIAsKE3EdC/A0B/ES cADAcnks1x2BCrIgNVkIYCAOcQuAwGl0ZWx5IADADnCiIAORZXhjIcBsCfCZBUBwbwuABUB0aASQ IGUuICBCANBrIHZ3I5ADoHciMCSgGwAgxxsAB0Ah0XB1cxmgHgCOIAIQBcAjgSBVZCVBQyPwAxBs LCBJIfdhhwJAH9AFMXRvIGcSgHciQCHwB5BzGdAiMChxTesiEAIgbijgKCRQKIAEAJko0WJpJfED kW9mFHDgbGkncyknMChxEnCvIjAGkCwgJmFtKuBoBUD5KTB5LynQLCADcBKAJcM7C4AlEWcLEQQg KHFQRPkj0U5vB+AjgCfwK7ArQD8WcCMQBJAtsCSBKlFrbn8vkAQgKlAvoSiFKAECMGmvAiAj0SdQ EkBkIxFzIbCfMzAo6y2yKacrES1jCkC8YiAWcDFQCcAIYHAnMM8AcDMwLfEwFGd1IBAw0z5zNmAz UQmAIdEFoHVs8zMwKK1ociEwKHEjkSog8wdAI4BvJydBLfIkMCfw7y+zIxAKwDKAYzjQCsEygLM0 sSyid2EEIC5RRQhwym8wcCAakG9rJdI7sX8qUCWgB5Ar0TaiJmEpMGn9P7N3OMMmET1wCyAh8CHg 3RsAcQpQM3Aj0VcjkCOC/ypwBUAWgBfxGeAoUzpyBbH9MTB0JzISQELwRAEqcA5wfmEywxZxF/Ej kEEiAHB5/y30AaAIYAVAIaAnMC2wJ0DsJ20iQAQQdSzgJeEZQPxvYgGgIdFEETLDB0BHgf50CIEz MAWgAjAA0DKAJeGOQSnwEoAhsCBGdQMA/yKiKIAqMxJABCAF4DaEN8P/IrEqkiuQMEErURpxItBK kdcCYClhCYBkIeBiRgEwEvcmQyWwPhBwJdISMUsBAyD4UVZDR2I0sStRJlJIgb8ioAmAMBErYCRQ DeBoQyHbKGI25HIuoAMAeifwMpFbLJMScSA2YDo0bFWgZt9LgDMwFnA98RqQZxmxAyC+ZAQAJTAS cCURV4FyEjD+KTLDH9EDEDORJlIwMlBR/wfgKlAzcDDTMxJaElkVOnK/TyhZtCZSJqBPYiYRZTaE /yyiSZNAAz0zQJ9BpChiSvXfI9MN0SVDMvQ9gGszkSYS3yRQJ/BC4zgDACAvJZACYP8N4CGgIeAs oji0JZAoU1wz30/lJpgqcTgAI8JJT/Iqgf8ZwBJwJzJPgCuQQuEmQykGu0M4JzBiRxEnUCnRJwVA /zEiYyMmQ1fhIyAAgD1TI9H/IDxJcQnCReMygCHRO+Mkof9Eg2XCBRAl4S8wIfBdgS5B91PDN1EW YXJXMWRESjIE8L8ykCWgFnAEECPRKbB5T4D/J0FQUTjWLbIwMihxAMBisH8o0RsABaFXYCXhK1Eo 4CK5chBwIi2hHgBkMG8f0Ps71DL0dwUQMkIo0TixC1B9IjB5T5MZ0ScwYdIzkVnKTy8hISPgKEkv 8gOR9yNBMmRyI25YYhJAfSJ7Md5CRxElJCcyO1R5CGFE8/8EICTTIocr4TvyfwIqAHxF/zYzBCB0 RXLCRQFcYQdwAxD7CsE9cHku4y6gQmMyNy73/3PEJKF0RGtiPyEmQyKASoH/LTE0sS3SBHAqkS7h WVIjgt8xYUSRJzBCsSzkZHIQB+D/cPOEqCxxJKEFoDSxVZED8P8jgC2pS4FBsWrEcZpFAip0/xng BHAwIjLDO1WDQSXhUbr/DoEaoTukeaEIYB4AF/EFAP8vkE0BOMNz8U+AFnAhcGSQ+1cxKHBvQgQD oCdQPXIhcP8SYH3SWAQl0kFhSkFXYDKC/2rBXWMnQSYlKdBKkAWwBCD/MSAH0WvzQrE9cScyPlIz kftVkUFhcwbABTADcD2TKyJfOOEHgFdgVyIbAGYjoW7/IqAqwD5hO9RBYQqxIuGJYv0zMChCsTMS T4AkcWRDLKE/MzFIli5RJlILYEtBNjD/MAJD8VxCI4NYYpVjJaCW9f5wXfGbtj2BdfKddYCCndX/ WQI0sQUQLQIvA6YkAiAlYv9IkSLQR9A9cqZHDnAE8k+A/zMwQrGlQ1dmkZY44ASQfjL/TOMi4oUU DnABkAMRQrEDUv0jd0FsJDziJzBEgSXSRNX/O9RwwTi0M3AFEHXBkuYwcD8+ECLQflQIYC0BJzAi V/8isScwN3ApES+2RBFr5Eew/0ShQzIZwIbyR7K08qLFO7E7aeM2Qi53QHtgPWMyN/+SZjziWGRr RCUlO1Qt84lkt1DTKKBBQXUSMInBLiPA/ycwBGBaMVIFcd1MYrA7GUD/SyEh4byBRkK3gxnAA6Ao ov8hoK7CGpC9Y7KElPI7J4Kn96qSJRGh8WlC8CHRlFEq4P8DoFdll/K2FFATm7Y6sAVA/yLQPYCu ASYllhSdcAfgecP+KSJAJPG/9SSgJsEAwGKjvmJvQlzxOhC7cCPRVCOS/ypyIVkHQMIkCYC8gFS0 ZcPfazJdon+CJsE9gWoloAVAv3HWIhBC8TKApAPCUmSQKf8tuFBRJCAl0pPHDoFOokSh/igtuChw AZAlUkcCK1FN4/uMkyZSIqwFd0AHcClC0YOHWGJztQORTVRWIK/gfw5wlSKFxzi0CfCggQVAQv8J 4K/ge6IzMH2xI4EiEC9Z/5O4V2DUUZ7iezHMIJ5iLPM/dLYyKSA8s8A2sCHgVGUvSLAh4CCWGiEA 4zAeAHAAAQAAABoAAABOYXRpb25hbCBQdWJsaWNpdHkgZm9yIFBEAAAAAgFxAAEAAAAWAAAAAb2k Nl6vsbgEgQAAEACX4GIjjHh+tAAAQAA5AHhk2m5npL0BAwDxPwkEAAAeADFAAQAAAAcAAABURUJB WVcAAAMAGkAAAAAAHgAwQAEAAAAHAAAAVEVCQVlXAAADABlAAAAAAAMA/T8ADgAAAwAmAAAAAAAD ADYAAAAAAAIBRwABAAAANgAAAGM9VVM7YT1BVFRNQUlMO3A9TE1DTztsPUVNU1MwMk0wNS05ODA2 MzAyMDQxMThaLTI3MDY3AAAAAgH5PwEAAABGAAAAAAAAANynQMjAQhAatLkIACsv4YIBAAAAAAAA AC9PPUxNQ08vT1U9U0lURTAyL0NOPVJFQ0lQSUVOVFMvQ049VEVCQVlXAAAAHgD4PwEAAAAPAAAA VGViYXksIFdlbmR5IE0AAB4AOEABAAAABwAAAFRFQkFZVwAAAgH7PwEAAABGAAAAAAAAANynQMjA QhAatLkIACsv4YIBAAAAAAAAAC9PPUxNQ08vT1U9U0lURTAyL0NOPVJFQ0lQSUVOVFMvQ049VEVC QVlXAAAAHgD6PwEAAAAPAAAAVGViYXksIFdlbmR5IE0AAB4AOUABAAAABwAAAFRFQkFZVwAAQAAH MICFQvtYpL0BQAAIMIiDfkZnpL0BHgA9AAEAAAABAAAAAAAAAB4AHQ4BAAAAGgAAAE5hdGlvbmFs IFB1YmxpY2l0eSBmb3IgUEQAAAAeADUQAQAAAEAAAAA8OThCOThFOTUxQkEwRDExMTlBNTkwMDAw RjgwNDVBNDc4OTI0OTBAZW1zczAybTA1LmVtcy5sbWNvLmNvbT4ACwApAAAAAAALACMAAAAAAAMA BhByWu+EAwAHEIcJAAADABAQAAAAAAMAERAAAAAAHgAIEAEAAABlAAAAUk9TRU1BUlksWU9VREVG SU5JVEVMWU1BREVBTkVYQ0VMTEVOVFBPSU5UVEhFUkVCQUNLV0hFTldFV0VSRVJFQUxMWVBVU0hJ TkdGT1JUSEVVREFMTEJJTEwsSU1BREVBTkFUVAAAAAACAX8AAQAAAEAAAAA8OThCOThFOTUxQkEw RDExMTlBNTkwMDAwRjgwNDVBNDc4OTI0OTBAZW1zczAybTA1LmVtcy5sbWNvLmNvbT4AvNY= ------ =_NextPart_000_01BDA467.467E8388--