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This will be my first time on. Have been reading the letters for about 2
weeks. Saw the
one about having pd written up in magazines. Today I got our FDA
Consumer
magazine in the mail & there was an article about pd & had the parkinson
net list
address in it too. Here is what it said. "SOCIAL NET'  For Parkinson's
disease patients,
both updated information & social interactions are key factors in
battling the disease.
Though patients seek these through traditional means such as their
doctors, families
& friends, many are turning to the internet.
Patients can compare notes on pd issues & stay in touch with others with
the disease
by subscribing to an internet parkinson's mailing list. Some of these
list deal with pd
as one of a number of neurological disorders. Others focus on
caregiving. One list
that is an open forum just for parkinson's patients is called
"PARKINSIN"
Maintained at the University of Toronto, PARKINSN gives patients a place
to
pose questions or just let off some steam. A recent scan of the list
revealed
messages about exercises that can relieve some pd discomfort, surgery
success stories
reviews of books about the disease, poems, even some pd jokes. ONe list
member
announced that he is marrying his doctor, & he invited everyone on the
list to his wedding
To join PARKINSN send an e-mail message to [log in to unmask]
in the body of the note, write: subscribe PARKINSN (your first name)


(your last name)
End of that part of the message in the magazine. There was 6 pages about
pd Had
pictures of Muhammad Ali, Billy Graham & George Wallace. I was thrilled
to see it.
Now a little about my husband & me  Jim has had pd for 3 years now. It
is till in the
early stages. only has a little tremor in lest hand. Went to get an eye
exam. Nurse put
in eye drops to dilate his eyes, then he could not see anything. She
called in the dr.
He said he had dry eyes. ask Jim in he shook a little? He said yes he
did. Dr said he
may have pd & he was forgetting to blink his eyes, & this was the
problem. He sent
him to a neurologist, we didn't get along very well. So went ot a
movement disorder
neurologist out of town. He is great, doesn't believe in giving too many
medicines.
We have really enjoyed the conversations, has helped us a lot.
Betty cg of Jim