^^^^^^WARM GREETINGS FROM^^^^^^^^^^
Ivan Suzman 48/11 [log in to unmask]
Portland, Maine land of lighthouses deg. F
***********************************************************
--------- Begin forwarded message ----------
From: cureit
To: [log in to unmask]
Cc: [log in to unmask]
Subject: Re: WHAT!/ Dennis Greene's letter requested
Date: Thu, 9 Jul 1998 14:53:33 -0400
Message-ID: <[log in to unmask]>
References: <[log in to unmask]>
<[log in to unmask]>
Dear Hilary Blue, Dennis Greene and listmembers:
Another breakthrough seems imminent.
I think Dennis finally will have a chance to get his editorial on Udall
and Parkinson's published here. I can't promise anything, but I was
encouraged by a telephone conversation I just had with George Neovall,
Editorial Page Editor for the Portland (maine)Press-Herald. This is a
Gannett Newspaper.
Dennis, at your earliest convenience, would you please send Mr. Neovall
your editorial, as a "Letter to the Editor," to the newspaper's e-mail
address? It is: [log in to unmask]
Mr. Neovall has already written two editorials about efforts in Maine and
beyond to pass and fund the Udall Act. Anyone on the list who wishes to
write a Letter to the Editor may use the same address.
Ivan
^^^^^^WARM GREETINGS FROM^^^^^^^^^^
Ivan Suzman 48/11 [log in to unmask]
Portland, Maine land of lighthouses 77 deg. F
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On Thu, 9 Jul 1998 14:09:34 -0400 Jed Blue <[log in to unmask]> writes:
>Ivan M Suzman wrote:
>>
>> Hi Marling, and people on the List.........
>>
>> Maybe I am cranky, too, Or maybe I am going just a little bit
>crazy. I
>> just know PD isn't recognized as the monster it really is!
>>
>> Today another caregiver quit--I g77ot a note, taped to the kitchen
>door,
>> that reads in part:
>>
>> "I neither have the training nor the vocation to care for someone
>with a
>> TERMINAL ILLNESS."
>> Imagine reading that before breakfast. UGGGGGGGGHHHHHHHH
>>
>> --didn't PD kill SIdney Dorris of the NPF Dorris Award? Didn't I
>hear
>> that he died of bowel obstruction DUE TO PARKINSON'S??
>>
>> Morbidly yours,
>>
>> Ivan
>>
>> P>S> What about the virus theory?? Are there scientists on the
>List, or
>> anyone, who would like to enter into this discussion?
>>
>> ^^^^^^WARM GREETINGS FROM^^^^^^^^^^
>> Ivan Suzman 48/11 [log in to unmask]
>> Portland, Maine land of lighthouses 68 deg. F
>> ***********************************************************
>>
>> On Thu, 9 Jul 1998 08:57:14 +0000 Marling McReynolds
>> <[log in to unmask]> writes:
>> >Maybe I am just cranky today, but so much has been said of late
>about
>> >poor (in spirit not money) people with aids or als or some other
>> >"fast" acting disorder needing sympathy and help that I am about to
>> >scream. I think even with the horrible pain, etc. I would rather
>go
>> >in 3 years than live in misery for the next 40 with pd. I cannot
>say
>> >that having pd is better than als. My family are long lived and
>tend
>> >to continue "working" and "doing" all their lives, sometimes in
>spite
>> >of medical conditions. I do not look forward to 40 or more years
>of
>> >shaking, freezing, jerking, and being miserable. No one may agree
>> >but 3 to 5 years of misery seems almost a comfort compared to the
>40
>> >I have to look forward to.
>> >
>> >don't forget how to laugh (and do it often)
>> >Marling McReynolds
>> >[log in to unmask]
>> >http://members.tripod.com/~marling
>> >
>Hi Ivan, Marling and anybody else
>I'm definitely one of the cranky set today - to spend the rest of my
>life hitting innocent kids in the face - or walking through a sea of
>glue - or is it living on a high gravity planet - yoou know what I
>mean
>- and the only solution is: protect the children of the world and
>have
>a pallidotomy . Excuse me , who is going to pay for it? Some of us
>don,t qualify for Medicare. Yecchhh!!!
>About the virus theory - My first major PD symotoms occurred after a
>mysterious viral illness I contracted 3 days after arriving in london
>from South Africa. This was 1974, not long sfter the days of Marburg
>and Lassa, and the british were not clear on the difference between
>Johannesburg and Botswana etc, so I was hospitalised for 5 weeks
>while
>they treated me with aspirin and never found out what was wrong. I
>had
>presented with a temperature of 105, so that has been postulated as
>one
>of the possible triggers of my PD, but then it might have been the
>virus.....
>
> "Laugh and the world laughs with you. Cry,
>and
> the world laughs at you."
> Hilary Blue
>
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