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"What will happen is life will go on and private industry will keep
their
research going to discover greater symptomatic relief or cure.  Don't
count
> on the government to do anything.  And, when they do be pleasantly
> surprised."

I disagree.

"Private industry" is not an organized group.  It is made up of
individual, profit-seeking, competitive companies.  Contrast that with
the federal government, which is organized specifically to apportion
scarce dollars to achieve goals for the good of ALL when the free
market can or will not on its own.

Given that, we all know that "private industry" has no interest in
funding its own research unless the outcome is demonstrated to be
profitable.  That means that the profits must outweigh ALL the costs
of research.  And, unless you're inventing Viagra, that is a tough
balance sheet to come up with.  God Bless Capitalism.

But, research hospitals and universities, where the real discoveries
are made, have a different mission and need public funding.  That is
not to say that these are the most economic and frugal investments we
can be making as a society, but they are all we've got to work toward
curing our ills.  Look at the AIDS cocktail, which is keeping so many
people alive today.  What about chemos and radiation that keep breast
cancer survivors surviving?  It is naive to think for a second that
those "cures" were developed by private industry or without some
research funded by federal grants along the way.

Will $100 million in a Udall bill cure PD?  Absolutely not.  Will some
Udall grant-funded clinical trial at a university come up with
something that might help stop the tremors or the dyskensia?  Maybe.
If so, THEN and ONLY THEN will private industry will step in, market
the technology and make it affordable.

That's the way the cookie crumbles.

And that is OK, in my opinion.  My two cents, anyway.







---Flemco- <[log in to unmask]> wrote:
>
> Bruce,
>
> What will happen is life will go on and private industry will keep
their
> research going to discover greater symptomatic relief or cure.
>
> I personally think we are beginning to sound like the "welfare
mothers".
> Today $30 million dollars is not enough therefore make it a $100
million.
> And, tomorrow when $100 million is not enough demand $1,000 million,
and on,
> and on..... This $100 million dollars "doesn't grow on trees".  The
citizens
> of this country have to come up with this money by not spending it
on their
> kids, new house, or whatever they desire. I don't know about you,
but I do
> not have the nerve to ask my neighbors to help pay for my problems.
>
> Sooner or later we each face up to the fact that we were dealt a
rather weak
> hand in this life, but it is the only (trembling) hand we have got
to play.
>
> Larry Fleming
> [log in to unmask]
>
>
>
>
> -----Original Message-----
> From:   Parkinson's Information Exchange
> [mailto:[log in to unmask]] On Behalf Of Bruce Anderson
> Sent:   Friday, July 10, 1998 10:10 AM
> To:     Multiple recipients of list PARKINSN
> Subject:        WHAT! happens if it doesn't work?
>
> Does anyone out there feel that some of us are making too much of an
> emotional commitment to the funding of this Udall Law, perhaps?  I
mean all
> of the anger, anguish, frustration, "I'm Mad as Hell...," etc.
directed at
> Congress for not funding it, soon no doubt to be followed by
jubilation when
> it does.  And then what happens to our individual psyches
if.....nothing
> happens?  Which is a good possibility. When was the last time anyone
 found
> a "cure" of a neurological disease?  Finding one is also a
possibility.  I'm
> in favor of our working our asses off to get funding of Udall & I
think I've
> done my part. I just think we have to be careful of putting to many
> emotional  eggs in one basket.  They may find a way to prevent future
> victims.  But we may have to live with improved management of our
sumptuous.
> Any thoughts?
>

==
Leslie Lillard Walden  ([log in to unmask])





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