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Date:   Friday, July 10, 1998 3:27:54 PM
From:   [log in to unmask]
Please direct any questions or comments to Michael Claeys,
PAN's Community Outreach Coordinator at (800) 850-4726

I would like to thank Leslie Lillard Walden for her sound advice on
communicating with Congressional offices.  Her experience will certainly
be an asset as the Parkinson's community's campaign to fully fund the
Udall Act moves progresses.

To avoid readers' confusion, however, I want to correct some of the out
of date or inaccurate information contained in her post.

First and most importantly, the Morris K. Udall Parkinson's Research Act
of 1997 has already passed the House and Senate and been signed into law
by President Clinton -- signed on November 13, 1997 -- as part of the
fiscal year 1998 Labor, Health and Human Services, Education and Related
Agencies (Labor/HHS) Appropriations Act.  The Udall Act authorizing the
NIH to direct up to $100 million in research focused on Parkinson's
disease in fiscal year 1998, and such sums as may be necessary for
fiscal years 1999 and 2000 is now the law of the land.  Our challenge
now is to ensure that this authorized funding get appropriated at the
highest amount possible.

This appropriated funding will come about through specific language
included in the fiscal year 1999 Labor/HHS Appropriations Act.  This
massive bill will contain language setting the funding levels for all
research conducted through the National Institutes of Health (NIH), as
well as funding and directions for the entire Departments of Health and
Human Services, Labor, Education and other government agencies.

The House and Senate Labor/HHS Appropriations Subcommittees are each
currently crafting their own versions of the fiscal year 1999 Labor/HHS
bills.  Each version will move from the Labor/HHS Appropriations
subcommittee to the full Appropriations committee in their respective
body (House and Senate).  (This step has already occurred in the
House.)  Later in the year, the full House and Senate will pass their
own respective version of the Labor/HHS Appropriations bill for fiscal
year 1999.

The two versions of the Labor/HHS bill will likely contain slightly
different language regarding Parkinson's disease research funding - as
well as lots of other differences (some of them major) in both
descriptions and funding levels for various programs.  All these
differences will be worked out by a "Conference Committee" comprised of
the members of both the House and Senate Labor/HHS Appropriations
Subcommittees - these are the 29 highest priority Members of Congress
our grassroots and professional activists have spent so much time
targeting this year.  The Conference Committee will produce one final
version of the Labor/HHS Appropriations bill for fiscal year 1999, and
that version must be passed - without amendment -- by both the House and
Senate and then signed by the President.  If any of these steps is not
accomplished, the bill is sent back for further consideration and
adjustment until a mutually acceptable version is agreed upon.  As this
is an election year, it is highly unlikely that the Congress will
adjourn without passing some version of a Labor/HHS bill for 1999.

At the present time neither the House or Senate versions of the
Labor/HHS Appropriations bill has been assigned a bill number.  At some
point in the near future, bill numbers will be assigned and Parkinson's
activists will be notified.  The bill numbers "S. 535" and "H.R. 1260"
were for the freestanding Udall bill as introduced in 1997, and have no
relevance to this year's campaign.  In fact, bill numbering begins from
scratch each legislative session (each year) and the numbers S. 535 and
H.R. 1260 have likely been assigned to new bills.

Since the Udall Act has already passed, there is no need to get
cosponsors.  Furthermore, cosponsors are typically not gathered for
appropriations bills.

One other technical correction:  As the description above indicate, both
the House and Senate have jurisdiction and committees organized to both
authorize and appropriate new spending.  Authorization and
appropriations bill can be initiated in either body, but must ultimately
be approved by both before proceeding to the President's desk..

A final note about the House and Senate calendars.  The Senate is
currently in session and will remain so through July 31.  They are
scheduled to recess from August 1 through August 30.  The House is
currently in recess and is scheduled to return on July 14.  They will
remain in session through August 9, before recessing until September 9.
Both bodies are scheduled to adjourn for the year on October 9.  All of
these dates are subject to change.

The Parkinson's Action Network will soon distribute more information
concerning advocacy activities during the upcoming congressional
recesses.
Please direct any questions or comments to Michael Claeys,
PAN's Community Outreach Coordinator at (800) 850-4726