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ATTABOY, Ivan!!!!! You make me want to get out there and wave banners and cheer! But not only that' YOu have done far more than that, for you have got someone to listen to you, you have done something concrete and have achieved a reaction. More than a reaction: somebody is responding to your call and doing something. And that is no mean achievement. Back in the 6t0s and 70s, when we went on protests, and caried posters, and sang "we shall overcome" we achieve d a result - the police came and arrested us. But that didn't change the society. It is people like you, who insist on being heard, who achieve things. THank you Ivan, and keep it up! Hilary Ivan M Suzman wrote: > > Hi Bruce--and listmembers, > Today I > called the legislative aides in charge of health policy for Senator Reed > of Rhode Island, Senator Snowe of Maine and Representative Baldacci of > Maine. I called each of them in their Washington offices. > > I leaned over the speakerphone, and used every ounce of vocal cord I > could muster. My voice is getting slurry and soft, so I had to speak so > loud that I shook, just to compensate enough to be heard. > I did not say "Udall Act" or "Udall Bill." I said Udall LAW. > > I INSISTED that the Udall LAW's wording calls for ten research centers to be funded, calls for > scientists to be trained, and calls for public education. > > I distinguished between the "Parkinson's research" the NIH CLAIMS is > already being spent--and the research that is the Udall law's intent. > The $45 million figure that PAN talks about is not actually COORDINATED > research on Parkinson's. Rather, it is research on many different areas > of brain chemistry and cells, and on other diseases. It is not all under > a single Parkinson's umbrella. > > That $45 million that might help to understand Parkinson's, but, many > of the included grants, make NO mention of Parkinson's, SPECIFICALLY. > > I persuaded all three aides to listen when I mentioned that there are > more people in the United States with Parkinson's than with AIDS! If > AIDS gets $2400 million/year, then we deserve AT LEAST, as a FLOOR, as a > START, as a crumb of the cake, ALL 100 million dollars the Udall law > calls for. Anything less, is, to me, UNACCEPTABLE. > > I also called Paul Smedberg of the APDA at 1-800-684-2732--he said he > will send a letter to Maine's Congressman Baldacci, asking Baldacci to > submit an AMENDMENT specifically intended to provide the $100 million we > deserve. I figure we have nothing to lose! > > I've reached the point of refusing to be told to wait. That is a > HUGE mistake. > > Ivan S. > > -=^^^^^^WARM GREETINGS FROM^^^^^^^^^^=- > Ivan Suzman 48/11 [log in to unmask] > Portland, Maine land of lighthouses 67 deg. F > *********************************************************** > > On Sun, 12 Jul 1998 18:41:12 -0400 Bruce Anderson > <[log in to unmask]> writes: > > I started this string with a simple premise. The discussion which > >resulted went way beyond that, which I think is great because I for > >one > >learned quite a bit. (SNIP)