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James and Susan Shotwell wrote: > > Hello Carole, > Thank you for your response. My mother has been to Emory University for > consultation and University of Virginia as well as her own neurologist. > She has also been in touch with Dr. Iacona at Loma Linda and sent her > video and medical questionnaire. All believe her to be a good candidate > for the procedure. > On Monday, after I posted my question, we received confirmation from > Loma Linda that my mother had received a surgery date of August 26 for > her pallidotomy. We are very excited and a little anxious as well. I > do hope that we have gotten enough medical opinions. I was hoping to > hear from folks who have received pallidotomies and what their > individual experiences have been. I have received a few replies. So > far I've heard good experiences and one unfortunate one. I am hoping to > hear from a few more. This list is a wonderful resource and support. > After mom's surgery my parents will be looking into getting a computer > and going on line. Mom is interested in checking out this list. > Thank you again for your imput. > Sue Shotwell > > Carole Cassidy wrote: > > > Hi, Sue, > > > > I think the question to ask is not where is the best facility, but is > > your > > mother likely to benefit from a pallidotomy? Many people have > > benefited, > > at least temporarily, but others have experienced failure or even > > gotten > > worse. My advice would be to look for a movement disorders > > specialist, > > preferably in a specialized center and then get a second opinion if > > you're > > not completely convinced that the advice of the first doc is > > appropriate. > > If you will tell me where you are, I may be able to recommend someone > > near > > you. > > > > Carole Cassidy > > > > At 09:50 PM 7/27/98 -0400, you wrote: > > >Hello, > > >My name is Sue Shotwell. My mother was diagnosed with Parkinson's > > about > > >12 years ago. She is 71 this year. I signed onto this list hoping > > to > > >find out any information anyone might have on Pallidotomies. Two > > >questions would be, where is the best facility to have it done and > > how > > >long does an individual benefit from the procedure? > > >I truly appreciate any help anyone can give me and my mother. Mom > > has > > >been on the meds for so long and suffers very much from > > hallucinations. > > >Recently Tasmar was added to her meds and that has been very helpful. > > > > >But who knows for how long. > > >Thanks again! > > >Sue > > > > > >-- > > >Sue Shotwell > > >aka.Dustnthewind > > >Stamping in the Light! <>< > > >Peace is not the absence of trouble, but the presence of God. Oswald > > > > >Chambers > > > > > > > > -- > Sue Shotwell > aka.Dustnthewind > Stamping in the Light! <>< > Peace is not the absence of trouble, but the presence of God. Oswald > Chambers Dear Sue, I had a bilatteral pallidotomy done by Dr. Iacona on Oct. 16, 1994. My experience has been favorable in that I have no more dyskensias. However, I did experience some depression directly after the surgery. This was helped by Paxil,which I still take. However, I have noticed a decline in speech and in my cognitive ability. My speech problems were directly related to the operation, but the cognitive deficit could be a result of the advancing disease. Please be assured that your Mother is in EXCELLENT HANDS at Loma Linda. Regards, Marv Weiss 49(13)