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Sue, I wish your mother the very best results possible. It sounds as if you're in the Southeast somewhere. Have you considered having this done closer to home? Sure would be easier for follow-ups, etc.! Carole Cassidy At 09:45 AM 7/30/98 -0400, you wrote: >Hello Carole, >Thank you for your response. My mother has been to Emory University for >consultation and University of Virginia as well as her own neurologist. >She has also been in touch with Dr. Iacona at Loma Linda and sent her >video and medical questionnaire. All believe her to be a good candidate >for the procedure. >On Monday, after I posted my question, we received confirmation from >Loma Linda that my mother had received a surgery date of August 26 for >her pallidotomy. We are very excited and a little anxious as well. I >do hope that we have gotten enough medical opinions. I was hoping to >hear from folks who have received pallidotomies and what their >individual experiences have been. I have received a few replies. So >far I've heard good experiences and one unfortunate one. I am hoping to >hear from a few more. This list is a wonderful resource and support. >After mom's surgery my parents will be looking into getting a computer >and going on line. Mom is interested in checking out this list. >Thank you again for your imput. >Sue Shotwell > >Carole Cassidy wrote: > >> Hi, Sue, >> >> I think the question to ask is not where is the best facility, but is >> your >> mother likely to benefit from a pallidotomy? Many people have >> benefited, >> at least temporarily, but others have experienced failure or even >> gotten >> worse. My advice would be to look for a movement disorders >> specialist, >> preferably in a specialized center and then get a second opinion if >> you're >> not completely convinced that the advice of the first doc is >> appropriate. >> If you will tell me where you are, I may be able to recommend someone >> near >> you. >> >> Carole Cassidy >> >> At 09:50 PM 7/27/98 -0400, you wrote: >> >Hello, >> >My name is Sue Shotwell. My mother was diagnosed with Parkinson's >> about >> >12 years ago. She is 71 this year. I signed onto this list hoping >> to >> >find out any information anyone might have on Pallidotomies. Two >> >questions would be, where is the best facility to have it done and >> how >> >long does an individual benefit from the procedure? >> >I truly appreciate any help anyone can give me and my mother. Mom >> has >> >been on the meds for so long and suffers very much from >> hallucinations. >> >Recently Tasmar was added to her meds and that has been very helpful. >> >> >But who knows for how long. >> >Thanks again! >> >Sue >> > >> >-- >> >Sue Shotwell >> >aka.Dustnthewind >> >Stamping in the Light! <>< >> >Peace is not the absence of trouble, but the presence of God. Oswald >> >> >Chambers >> > >> > > > > >-- >Sue Shotwell >aka.Dustnthewind >Stamping in the Light! <>< >Peace is not the absence of trouble, but the presence of God. Oswald >Chambers > >