 |
 |
Does anyone know how to contact the people who organize the Nebraska registry? Carole Cassidy At 10:10 AM 7/30/98 EDT, you wrote: >Hi > >Attempts to gather information on PWP is admirable..... > >Push to get others to gather information about us is admirable.... > >I do recall taking quite a beating on this list a couple of years ago when the >Nebraska registry was established by the Unicameral.......why?......because of >rights of privacy for patients. How are you going to keep tabs (without >double counting some folks) without identifying patients........or has that >issue been settled and I missed it somewhere along the line? > >Where will the funding come from for this count? Are you willing to forgo >research dollars that a pharmaceutical co might spend on research on >medication for a registry? Are you willing to spend Udall $$'s for the head >count? Are you willing to have this database established now on a national >basis? > >I do understand the need for #'s of PWP's...... > >Rita Weeks > >