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Dear Sue, Have you read all the pallidotomy testimonials on the internet from the "hole in the head gang"? Go to: http://www.parkinsonalliance.net/medical/hihgang.htm jjjane >Hello Carole, >Thank you for your response. My mother has been to Emory University for >consultation and University of Virginia as well as her own neurologist. >She has also been in touch with Dr. Iacona at Loma Linda and sent her >video and medical questionnaire. All believe her to be a good candidate >for the procedure. >On Monday, after I posted my question, we received confirmation from >Loma Linda that my mother had received a surgery date of August 26 for >her pallidotomy. We are very excited and a little anxious as well. I >do hope that we have gotten enough medical opinions. I was hoping to >hear from folks who have received pallidotomies and what their >individual experiences have been. I have received a few replies. So >far I've heard good experiences and one unfortunate one. I am hoping to >hear from a few more. This list is a wonderful resource and support. >After mom's surgery my parents will be looking into getting a computer >and going on line. Mom is interested in checking out this list. >Thank you again for your imput. >Sue Shotwell > >Carole Cassidy wrote: > >> Hi, Sue, >> >> I think the question to ask is not where is the best facility, but is >> your >> mother likely to benefit from a pallidotomy? Many people have >> benefited, >> at least temporarily, but others have experienced failure or even >> gotten >> worse. My advice would be to look for a movement disorders >> specialist, >> preferably in a specialized center and then get a second opinion if >> you're >> not completely convinced that the advice of the first doc is >> appropriate. >> If you will tell me where you are, I may be able to recommend someone >> near >> you. >> >> Carole Cassidy >> >> At 09:50 PM 7/27/98 -0400, you wrote: >> >Hello, >> >My name is Sue Shotwell. My mother was diagnosed with Parkinson's >> about >> >12 years ago. She is 71 this year. I signed onto this list hoping >> to >> >find out any information anyone might have on Pallidotomies. Two >> >questions would be, where is the best facility to have it done and >> how >> >long does an individual benefit from the procedure? >> >I truly appreciate any help anyone can give me and my mother. Mom >> has >> >been on the meds for so long and suffers very much from >> hallucinations. >> >Recently Tasmar was added to her meds and that has been very helpful. >> >> >But who knows for how long. >> >Thanks again! >> >Sue >> > >> >-- >> >Sue Shotwell >> >aka.Dustnthewind >> >Stamping in the Light! <>< >> >Peace is not the absence of trouble, but the presence of God. Oswald >> >> >Chambers >> > >> > > > > >-- >Sue Shotwell >aka.Dustnthewind >Stamping in the Light! <>< >Peace is not the absence of trouble, but the presence of God. Oswald >Chambers http://www.parkinsonalliance.net/medical/palross/palross.htm