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Hi, Dale, We have a pretty good list of support groups in California and Nevada, which I will ask our Outreach folks to forward to you. These include NPF/APDA/PDF groups, as well as a lot of independent groups. Do you want our essential tremor and PSP groups as well? Carole Cassidy At 04:06 AM 8/1/98 EDT, you wrote: >Dear Friends: I am in the process of developing a national Data Base (using >Microsoft Access) for as many support groups in the United States as I can >identify. >I am working from lists of the various organizations. I am merging the lists >and then calling each support group leader to verify the information is >accurate. I then compose the state list and send a copy to all the support >groups in the current state I am working on. >With that first state mailing I ask each group to verify the accuracy of their >information. I then ask them to check the list and provide me with information >of any groups they may know of that are not on the list. Finally I ask for the >number of people on their mailing list and hopefully this will help us count >the minimum number of people with PD or it will at least number the PAP that >can be contacted by sending messages to the support groups. >From time to time I may ask for help developing the list. The work product >will be available to any one on the list requesting a copy, any PD >organization requesting a copy and anyone with a reasonable PD purpose or >need. > >I am receiving lists from the NPF.APDA.PDF and PAN I am familiar with these >organizations and will audomatically send them copies of each state list as >they are developed. If there are other PD Organizations that Would like to >send me there list of support groups I will automatically include them in the >mailings. > >If you are a member of a support group please send me the following >information >1. Name of group >2. Contact person name >3. Mailing address for the group >4. Area Code >5. Telephone number >6. Number of persons on mailing list. > >If you are sure the information is correct that you are sending add a brief >note to that effect to save me a long distance phone call. > >If any of you have a collection of support groups in your state or can >acquire lists from sources other than those above please acquire them and send >to me. > >I can receive information from this list serve > >[log in to unmask] or [log in to unmask] or >Surface mail > >Dale Severance >1 Handhewn Way >Manlius, NY 13104 > >Or by fax at 315-682-3384 this later number is also used for my computer so >if you receive a busy signal please try to resend at a latter time. The fax is >hooked up for use 24 hrs a day. > >Thanks for your help. > >I am just about completed with NY State and I am one-third of the way into the >state of OHIO. Then to N. Carolina because I have done a lot of lobbying >there. From that point on I plan to do the most populous states in that order >with the thought in mind of reaching as many people as possible at one time. > >Ambitious under taking but when completed we will have a tool to reach far >more people than we can currently reach with one note or letter. > >