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Dear Parkinson's Community, Bob Dolezal has done all of us a great service. He has cut through the bull---- fed to Congress by the NIH, and has shown us how we in the PD Community are being screwed over and screwed over and screwed over by hype, distortion and false NIH reporting of so-called "Parkinson's" research dollars. Personally, it looks like I am going to be in the DC area for Rosh Hashanah (Jewish New Year's) from September 20 through 22. I have NO hesitation about participating in a PWP(Persons with Parkinson's)-led nonviolent protest, picket, prayer vigil, rally, gathering or sit-in at the Capitol! What about a PD gathering at the Capitol rotunda in Washington, DC, , from Monday September 21 through Sunday September 27th, the day of the Parkinson's Unity Walk in New York City?? A sit-in and prayer vigil would be easiest--all I have to do is wait for an off-state (low dopamine) to hit me, and I HAVE to sit down, because I can't walk a single step further without falling down! Mahatma Ghandi, Vietnam War resisters, Muhammad Ali, Nelson Mandela, and thousands of AIDS activists have staged successful nonviolent protests--so why not PWP's in numbers, and their CG's? I agree with everything you said, Bob. The Americans With Disabilities Act was only passed when PWD's (Persons with Disabilities) BLOCKED Congressional offices with their wheelchairs. If Ken Aidekman, Jacob Drollinger , Gina, Marling McReynolds, Don McKinley, Maryhelen Davila, Greg Leeman, Helen Mason, and you and I, George Lussier, Judith Richards and Dale Severance, and others could sit-in, maybe THEN we would get the Udall money. And Barb Mallut. And thousands more of us.... I am so scared that the Udall funding will NEVER happen. We are still nearly invisible. I'm afraid to face the facts--we are still but a whisper. WAITING for Congress is overemphasized and is NOT enough for me....we must be much more VISIBLE. IVAN ^^^^^^WARM GREETINGS FROM^^^^^^^^^^ Ivan Suzman 48/11 [log in to unmask] Portland, Maine land of lighthouses 58 deg. F *********************************************************** On Tue, 4 Aug 1998 12:24:07 -0700 robert l dolezal <[log in to unmask]> writes: >To: Members of the listserv > >PAN did not, cannot, say this publicly. But I can. > >Basically, the NIH is not telling the truth about its level of support >for >Parkinson's research.