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Hi guys, I know just what you mean. And appreciate what you're doing for us. But people just don't seem to realise that we exist - just had a social service agency tell me today that I was not eligible for a caregiver through their - wait for it -- "frail nd elderly " program!!! If I exist , there must be others out there like me. Hilary Blue ---------------------------------------------------------------------- Gerry & Brig Haines wrote: > > Guys, > Just a thought, I've spoken at churches, senior forums, and any other place I > can to make people aware of the fact that PD is not an old people"s disease > any more, not that it actually was in the first place. Once the audience > understands, that it's not your grandfather, your great-great aunt, or your > grandmother's best friend, it's your husband who's 47, or your sister who's > 35, they wake up. Even lobbying in congress, most of the staff is very young > and the first thing they say is "Oh, yes Parkinson"s Disease, my great aunt > had that, her hand shook". Yes, that's true, but here is my husband, he's 34, > or here's my brother, he's 40, Parkinson's affects all ages. > > Sorry, I got on my soapbox, I know you all know this, but I can't help it, WE > GET NO PUBLICITY!!!!!!!! I do the letters, the phone calls, the speaking, and > still get discouraged, won't give up though.....My husband and everyother PWP > needs a cure, and the darn funding of the Udall Bill. > > Gerry Haines(Brig's wife)