 |
 |
Hello everyone, My name is Jane Bracken and I just joined the list this Monday, and have been reading everything since then. This is a great forum and very informative. My mother, who is now 57, was diagnosed 2 years ago. I seem to be the only family member who realizes the seriousness of the disease and have been spending a lot of time trying to track down information, attend the doctor's visits with her, finding support groups, etc. She has just bought a computer so as soon as I can set her up, I hope to get her on-line herself. She is still on Eldepryl, but feels she is getting worse lately. She has had severe pain in her shoulder for the past few months, and the doctor has said she has 'frozen shoulder', where fibers have developed in her shoulder joint. I know it's easy to blame everything that happens on this condition, but we wonder if it could somehow be related to the stiffness that she is experiencing in her head and neck. Again, thanks for such a great forum. I have been searching in vain for more information on her meds and was 'thrilled'(?) to find the Drug Database, and to find out other drugs, such as Demerol, which should not be taken with Eldepryl. I thought I was keeping up on the latest issues, but the news about the Udall Act and other things I've learned this past week shows me how much there is to learn. Jane (cg for Ruth (57/2))