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What can the response be to, "You're young. [52] It's an older person's disease," (a 45 year old neurosurgeon, to me, last week)? It there a statistic we can us? Average, mean,median age, % of new cases diagnosed under 55 or 50 - or 40? Thanks, anyone. Bruce Anderson (52,4) - ----Original Message----- From: Gerry & Brig Haines <[log in to unmask]> To: Multiple recipients of list PARKINSN <[log in to unmask]> Date: Sunday, August 02, 1998 1:23 AM Subject: Re: Please help - Your input is needed >Guys, >Just a thought, I've spoken at churches, senior forums, and any other place I >can to make people aware of the fact that PD is not an old people"s disease >any more, not that it actually was in the first place. Once the audience >understands, that it's not your grandfather, your great-great aunt, or your >grandmother's best friend, it's your husband who's 47, or your sister who's >35, they wake up. Even lobbying in congress, most of the staff is very young >and the first thing they say is "Oh, yes Parkinson"s Disease, my great aunt >had that, her hand shook". Yes, that's true, but here is my husband, he's 34, >or here's my brother, he's 40, Parkinson's affects all ages. > >Sorry, I got on my soapbox, I know you all know this, but I can't help it, WE >GET NO PUBLICITY!!!!!!!! I do the letters, the phone calls, the speaking, and >still get discouraged, won't give up though.....My husband and everyother PWP >needs a cure, and the darn funding of the Udall Bill. > >Gerry Haines(Brig's wife)