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What does this mean for you? I don't know. What does this mean for me ? I don't know either. I showed the first definite signs ( hand tremor ) in 1973. When I was finally diagnosed, I asked the doctor, "How long have I got?" He said "Well, we don't have much experience of patients who've had it longer than 15 years...." That was 16 years ago!! Hilary Blue (49/16) ------------------------------------------------------------------------ Don Diswinka wrote: > > Jeanette, Marling and all others in this age group > > I echo your concerns at what this all means. My doc also told me " you > should live for decades, it is a very slow progressing disease" what the > h-ll does this really mean for me as I am also 49/2. Does it mean I'll > make 69? Doc suddenly scowled and didn't have an answer. My parents are > still alive, dad at 92 and my mother at 86, both with sound minds and > regularly aging bodies.In fact they still live on their own in the > country. > I have the same questions as you have is it 12.3/20/40 or what's the real > answer. If your wondering what 12.3 is; it is the mean survival age for > my area of the country I live in. > I also want a cure. > I really don't have time for this uninvited guest. Up till now I have > refused to be on meds(I have already been admonished by many here in this > group because of my choice), but I get to do most everything slowly, that > I try to do, although being limited by each progressing day. I still run > my own consulting business, I look after my 3 acres of lawn, my organic > garden,and my pasture containing horses. All I know is my left side of > my body is useless, no motor control in my left arm, and I have a painful > and very noticeable limp in my left foot. > Before this uninvited guest intrudes any further I want a cure and I want > it fast. > Another > Don > 49/2