Hi Dennis:
How are you? How is the weather your way? It is so hot (Indiana) here. And
I am so hot.
My feet and legs are so swollen, the skin is shiny. It looks like it has been
burned, sun, tanning booth, etc. I am so disgusted with these doctors. The
Psy told me that about 15 years ago he had a real run in with my GP. Over a
patient over meds and this rift has gone on forever. Well, I am tired of
feeling so bad, that I did send an email to Rush-Presbeterian-St. Lukes
Medical Center in Chicago Illinois. That is where I was diagnosed, but the
doctor died 2 months later. He was a research Doctor with the speciality of
Parkinson's Disease. What luck! LOL not with humor. It sent this email to
them asking for a new Doctor in Rush. Or if they could make a referel close
to where I live. I need a PD Doctor. I have always believed that my dentist,
doctors, pharmcist all of them were looking out for me. No, I think they are
looking out for their money. So, what say I love myself enough to find a good
doctor maybe 3 and stand up for my rights. Sounds like a plan. I really
never got any news or literature from these doctors here for Parkinson's. I
have even gone to the GP for almost 30 years. I keep sending for pamphlets,
books, literature. I need to have answers but yet I can get more meds just no
answers.
I told my GP that this started at least 10 years ago. Had a very horrible
backache. Couldn't walk stand, bend over nothing, went to the hospital, GP met
us there, admited me for 7 days. I had every scan, x-ray, etc, but no one
knew what this was. There were no answers. Well, I believe that the answer
has come. They thought stone, (Kidney, gall, every kind of stone in the
world, was it a female problem, that seems to always come up. LOL Before it
was just in my head. Now with things dying, and gushing out of my brain its
not all in my head anymore.
This is a mess. Kinda like the Non-PD or PD mess. Gosh that really woke up a
few people.
I hate this disease and what goes along with it. My grandaughter asked me
"Grandma why do you shake". I told her I was sick. OK was all she said. Why
can't other people be that understanding.
This is the child my oldest daughter gave up to her ex-husband. What a doll.
I am sorry Dennis to go on so much. I am on the opposite end of a Manic High.
I keep sliding down. That along with PD is a great honor. It's like the
comercial of the little boy saying "When I grow up I wanna be a junkie
(Parkinson's Person) I never dreamed oh so many years ago that I would have
this (I didn't even know what it was) I can't walk well, food is yuck, but I
don't loose weight, my hands shake, my head my lips, my legs, I have to watch
so I don't fall down, get dizzy pass out, can't drive, sold my car, I get so
frustrated. I know I'm not alone I'm sure you have these and more problems.
I try to explain to my husband, hes a good caregiver, he just wants nothing to
do with the Parkinson's. He said a while back it's because he can't fix me.
Who can? Maybe in time there will be something for all of us. I tried to tell
my husband to read about this disease, No. He shows no emotion. I have bought
a book that Caregivers should read. No . I'm lost. So lost. I tried so many
times to kill myself. Not nice I know. But when challenged with death It
becomes something I must battle. Fight the good Fight. Well, I have
"Chatted" enough. You have impressed me with your knowledge of this uninvited
visitor. If you have any suggestions please help. I need to gather all the
info I can. Because I'm not getting any from these so called men of medicine.
TTFN (TaTa for now)
Gina
Hug to you guy
{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{Dennis}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
Also, I have 2 schnauzers and 2 american domestic cats (just cats)
