Gina,
I think it is very upsetting for a husband to see their wife with a neurological
disease and visa versa. My spouse responded in the same exact sentence of "you
(meaning me) can't be fixed." Naturally, I had to reply:) by saying 'I may not be
able to be fixed, but I can be mended.' Mended meaning that some of the symptoms
are treatable, but the can not be cured now. I understand what my husband
meant. I have a certain amount of energy and I have to decide how to spread it
out.
Smile:) I know it is hard to do at times, but to me it is one of the best meds and
it's free!
That's all for now.
Nancy:) aka/Angel_3 on the parkie channel ( the other Nancy M :))
Gina Cass. wrote:
> Hi Dennis:
> How are you? How is the weather your way? It is so hot (Indiana) here. And
> I am so hot.
> My feet and legs are so swollen, the skin is shiny. It looks like it has been
> burned, sun, tanning booth, etc. I am so disgusted with these doctors. The
> Psy told me that about 15 years ago he had a real run in with my GP. Over a
> patient over meds and this rift has gone on forever. Well, I am tired of
> feeling so bad, that I did send an email to Rush-Presbeterian-St. Lukes
> Medical Center in Chicago Illinois. That is where I was diagnosed, but the
> doctor died 2 months later. He was a research Doctor with the speciality of
> Parkinson's Disease. What luck! LOL not with humor. It sent this email to
> them asking for a new Doctor in Rush. Or if they could make a referel close
> to where I live. I need a PD Doctor. I have always believed that my dentist,
> doctors, pharmcist all of them were looking out for me. No, I think they are
> looking out for their money. So, what say I love myself enough to find a good
> doctor maybe 3 and stand up for my rights. Sounds like a plan. I really
> never got any news or literature from these doctors here for Parkinson's. I
> have even gone to the GP for almost 30 years. I keep sending for pamphlets,
> books, literature. I need to have answers but yet I can get more meds just no
> answers.
> I told my GP that this started at least 10 years ago. Had a very horrible
> backache. Couldn't walk stand, bend over nothing, went to the hospital, GP met
> us there, admited me for 7 days. I had every scan, x-ray, etc, but no one
> knew what this was. There were no answers. Well, I believe that the answer
> has come. They thought stone, (Kidney, gall, every kind of stone in the
> world, was it a female problem, that seems to always come up. LOL Before it
> was just in my head. Now with things dying, and gushing out of my brain its
> not all in my head anymore.
> This is a mess. Kinda like the Non-PD or PD mess. Gosh that really woke up a
> few people.
> I hate this disease and what goes along with it. My grandaughter asked me
> "Grandma why do you shake". I told her I was sick. OK was all she said. Why
> can't other people be that understanding.
> This is the child my oldest daughter gave up to her ex-husband. What a doll.
> I am sorry Dennis to go on so much. I am on the opposite end of a Manic High.
> I keep sliding down. That along with PD is a great honor. It's like the
> comercial of the little boy saying "When I grow up I wanna be a junkie
> (Parkinson's Person) I never dreamed oh so many years ago that I would have
> this (I didn't even know what it was) I can't walk well, food is yuck, but I
> don't loose weight, my hands shake, my head my lips, my legs, I have to watch
> so I don't fall down, get dizzy pass out, can't drive, sold my car, I get so
> frustrated. I know I'm not alone I'm sure you have these and more problems.
> I try to explain to my husband, hes a good caregiver, he just wants nothing to
> do with the Parkinson's. He said a while back it's because he can't fix me.
> Who can? Maybe in time there will be something for all of us. I tried to tell
> my husband to read about this disease, No. He shows no emotion. I have bought
> a book that Caregivers should read. No . I'm lost. So lost. I tried so many
> times to kill myself. Not nice I know. But when challenged with death It
> becomes something I must battle. Fight the good Fight. Well, I have
> "Chatted" enough. You have impressed me with your knowledge of this uninvited
> visitor. If you have any suggestions please help. I need to gather all the
> info I can. Because I'm not getting any from these so called men of medicine.
> TTFN (TaTa for now)
> Gina
> Hug to you guy
> {{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{Dennis}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
> Also, I have 2 schnauzers and 2 american domestic cats (just cats)
