This is a multi-part message in MIME format. --part0_903475033_boundary Content-ID: <[log in to unmask]> Content-type: text/plain; charset=US-ASCII From Michael Claeys Please direct all comments and questions to Michael Claeys at PAN Call: 800-850-4726, email: [log in to unmask], or fax: 707- 544-2363. Parkinsons Action Network >[log in to unmask] >Action Alert >July 31, 1998 > >GRASSROOTS ACTION WITH CONGRESS NEEDED DURING THE MONTH OF AUGUST > > The month of August is a key time to work with legislators. Since Congress >is in recess, legislators spend most of the month in their home districts, making >it easier for them to meet with constituents. Legislators also often have more >time to meet and work with their constituents. > > Below is a checklist of activities that we urge you to take during August >to help ensure that Parkinson's disease receives increased research funding. > >MEET WITH YOUR LEGISLATORS > >Schedule an appointment with your legislators in their district offices during >the upcoming August recess. Or . . . > >*Invite your legislators to attend your support group meeting or schedule a special >meeting when your legislator can attend. > >*Attend one or more of your legislators' "Town Hall Meetings." You can call your >legislator's office to get the meeting schedule. > >SEND THEM THE MESSAGE > >Get the right message to Members of Congress. > >*Fully fund the Udall Parkinson's Research Act (P.L. 105-78) by ensuring that the >FY 1999 appropriation for the National Institutes of Health (NIH) includes at least >$100 million in Parkinson's-focused research, as provided in the Udall Act. (contact >the Parkinson's Action Network for copies of "Full Funding for Parkinson's Research") > >*The NIH currently plans to spend far less than $100 million on Parkinson's focused >research in FY99. The NIH says it will spend $106 million in FY 99 on Parkinson's >research but $62 million of that is allocated to "related" research that will not >be spent on Parkinson's-focused grants as the Udall Act requires. > >*Without Congressional action the NIH will spend most of the $100 million required >to fully fund the Udall Act on research not focused on Parkinson's. > >FOLLOW UP AFTER MEETINGS > >If you have met with your legislators this year, you need to follow up regarding >whatever promises, assurances or unanswered questions remain from your visits: > >*Ensure that your legislators received the sample letters (contact the Parkinson's >Action Network for copies) for them to send to the Appropriations Chairmen: Senator >Specter or Representative Porter. > >*If your legislators agreed to send a letter to the Appropriations Chairmen, follow >up to ensure a letter was in fact sent and ask them to send you a copy. > >*If they did not agree to send or have not yet sent a letter, keep working on them >to do so. Persistence pays! They also might be willing to speak personally with >Chairmen Specter or Porter. > >If you have not already met with your legislator: > >*Explain that although the Udall Act was passed in 1997, it has yet to be funded. >Ask for their help in securing $100 million in funding for the Udall Act in FY99. > >*Give your legislator the sample letters to the Appropriations Chairmen: Senator >Specter or Representative Porter (contact the Parkinson's Action Network for copies) >and ask that they send the letter to their Appropriations Chairman. > >*If your legislator is not willing to send a letter to the Chairman, ask if they >will speak personally with Chairmen Specter or Porter. > >BE PREPARED WITH ARGUMENTS > >Be prepared to respond to your legislator if they say that the NIH already spends >close to $90 million on Parkinson's research. > >*The majority of funds currently spent by the NIH -- despite claims by the NIH >-- are NOT spent on Parkinson's research. > >*Key Parkinson's researchers are reviewing a list of grants that the NIH says it >included in the $89 million spent on Parkinson's research in FY97. This review >is ongoing but the preliminary results confirm that most of the money was spent >on grants for other diseases or non-specific research areas. > >*Congress must live up to its commitment to fighting Parkinson's disease. > >Be sure to let us know the outcome of your meetings with your legislators. > >Call: 800-850-4726, email: [log in to unmask], or fax: 707- 544-2363. Parkinsons Action Network >[log in to unmask] > --part0_903475033_boundary Content-ID: <[log in to unmask]> Content-type: message/rfc822 Content-transfer-encoding: 7bit Content-disposition: inline Return-Path: <[log in to unmask]> Received: from rly-zb03.mx.aol.com ([172.31.41.3]) by air-zb04.mail.aol.com (v48.1) with SMTP; Tue, 18 Aug 1998 16:45:43 -0400 Received: from relay2.smtp.psi.net (relay2.smtp.psi.net [38.8.188.2]) by rly-zb03.mx.aol.com (8.8.8/8.8.5/AOL-4.0.0) with ESMTP id QAA05243 for <[log in to unmask]>; Tue, 18 Aug 1998 16:45:41 -0400 (EDT) Received: from [38.229.2.2] (helo=basshowes.com) by relay2.smtp.psi.net with smtp (Exim 1.90 #1) for [log in to unmask] id 0z8sdP-000557-00; Tue, 18 Aug 1998 16:45:40 -0400 Received: from BASS&HOWES-Message_Server by basshowes.com with Novell_GroupWise; Tue, 18 Aug 1998 16:46:04 -0500 Message-Id: <[log in to unmask]> X-Mailer: Novell GroupWise 4.1 Date: Tue, 18 Aug 1998 16:45:32 -0500 From: Kelly Abbett <[log in to unmask]> To: [log in to unmask] Cc: [log in to unmask] Subject: Barbara Schirloff Content-Disposition: inline Mime-Version: 1.0 Content-type: text/plain; charset=ISO-8859-1 Content-transfer-encoding: quoted-printable Action Alert July 31, 1998 GRASSROOTS ACTION WITH CONGRESS NEEDED DURING THE MONTH OF AUGUST The month of August is a key time to work with legislators. Since= =0ACongress is in recess, legislators spend most of the month in their ho= me=0Adistricts, making it easier for them to meet with constituents. Leg= islators=0Aalso often have more time to meet and work with their constitu= ents. Below is a checklist of activities that we urge you to take during A= ugust=0Ato help ensure that Parkinson's disease receives increased resear= ch funding. MEET WITH YOUR LEGISLATORS Schedule an appointment with your legislators in their district offices d= uring=0Athe upcoming August recess. Or . . . *Invite your legislators to attend your support group meeting or schedule= a=0Aspecial meeting when your legislator can attend. *Attend one or more of your legislators' "Town Hall Meetings." You can c= all=0Ayour legislator's office to get the meeting schedule. SEND THEM THE MESSAGE Get the right message to Members of Congress. *Fully fund the Udall Parkinson's Research Act (P.L. 105-78) by ensuring = that=0Athe FY 1999 appropriation for the National Institutes of Health (N= IH) includes=0Aat least $100 million in Parkinson's-focused research, as = provided in the=0AUdall Act. (contact the Parkinson's Action Network for= copies of "Full=0AFunding for Parkinson's Research") *The NIH currently plans to spend far less than $100 million on Parkinson= 's=0Afocused research in FY99. The NIH says it will spend $106 million i= n FY 99 on=0AParkinson's research but $62 million of that is allocated to= "related"=0Aresearch that will not be spent on Parkinson's-focused grant= s as the Udall Act=0Arequires. *Without Congressional action the NIH will spend most of the $100 million= =0Arequired to fully fund the Udall Act on research not focused on Parkin= son's. FOLLOW UP AFTER MEETINGS If you have met with your legislators this year, you need to follow up=0A= regarding whatever promises, assurances or unanswered questions remain fr= om=0Ayour visits: *Ensure that your legislators received the sample letters (contact the=0A= Parkinson's Action Network for copies) for them to send to the Appropriat= ions=0AChairmen: Senator Specter or Representative Porter. *If your legislators agreed to send a letter to the Appropriations Chairm= en,=0Afollow up to ensure a letter was in fact sent and ask them to send = you a copy. *If they did not agree to send or have not yet sent a letter, keep workin= g on=0Athem to do so. Persistence pays! They also might be willing to s= peak=0Apersonally with Chairmen Specter or Porter. If you have not already met with your legislator: *Explain that although the Udall Act was passed in 1997, it has yet to be= =0Afunded. Ask for their help in securing $100 million in funding for the= Udall=0AAct in FY99. *Give your legislator the sample letters to the Appropriations Chairmen:= =0ASenator Specter or Representative Porter (contact the Parkinson's Acti= on=0ANetwork for copies) and ask that they send the letter to their Appro= priations=0AChairman. *If your legislator is not willing to send a letter to the Chairman, ask = if=0Athey will speak personally with Chairmen Specter or Porter. BE PREPARED WITH ARGUMENTS Be prepared to respond to your legislator if they say that the NIH alread= y=0Aspends close to $90 million on Parkinson's research. *The majority of funds currently spent by the NIH -- despite claims by th= e NIH=0A-- are NOT spent on Parkinson's research. *Key Parkinson's researchers are reviewing a list of grants that the NIH = says=0Ait included in the $89 million spent on Parkinson's research in FY= 97. This=0Areview is ongoing but the preliminary results confirm that mo= st of the money=0Awas spent on grants for other diseases or non-specific = research areas. *Congress must live up to its commitment to fighting Parkinson's disease. Be sure to let us know the outcome of your meetings with your legislators= . Call: 800-850-4726, email: [log in to unmask], or fax: 707- 544-2363. ----------------------------------- Parkinson*s Action Network [log in to unmask] --part0_903475033_boundary--