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hi andy

you wrote, in part:
>I have been a member of this list for about two years.
>My company, Axon Instruments, Inc., makes the only
>FDA-approved microelectrode-guidance system for neurosurgery
>for Parkinson's Disease and other movement disorders...
>We have placed a somewhat modified version
>(without the voice track) on our web site:
>http://www.axonet.com/pallidotomy/01.htm
>If anyone is interested in viewing it and, perhaps posting comments
>about form and/or content I would be much appreciative.

i visited the site and scanned through it quickly

my viewpoint?

i have edited a few of the 'hole-in-the-head gang' stories
including a couple of pallidotomy surgery tales
so i may have higher expectations than a 'newbie'

[the hith-gang tales
are part of the Parkinson Alliance website
which is part of the People With Parkinson's Web Ring at:
http://www.webring.org/cgi-bin/webring?ring=parkie;list]

also, for what it may be worth, my professional
background has involved computer aided drafting

my initial reactions?
it's an interesting overview, yes
and i agree with you that it may be a bit simplistic

i found the sequence of diagrams of the brain a bit confusing
as to how they related to each other and to the text

since your company is involved in the mapping
i was possibly hoping to see something more detailed

i liked the metaphor used in the text comparing stereotactic mapping
to using latitude and longitude on the earth's surface
although that doesn't take in the third dimension

>.... I should apologize in advance for the first picture.
>The CD company was adamant that we use their art.
>If it is too offensive to enough people, perhaps we could
>get them to change it.

good idea!
i don't know if i find it offensive so much as disappointing
to see in this miraculous techno-age and
especially in this amazing new medium
yet another reproduction
of the stereotyped image of a person with Parkinson's [male, aged, infirm]
which only adds to the 'invisibility' problem that we are all struggling with

i find this use of the stereotyped image even more inappropriate,
since i understand that some people with Parkinson's
might be considered 'too old' for such surgery

in working on some statistics with a cyber-sibling recently, i found that
a case could be made [lacking any really hard data, granted]
for stating that fully HALF of all people with Parkinson's
noticed their first symptoms at age 47 or under!

i am 51, female, and was diagnosed at age 41
i first noticed symptoms at age 36 or so
i am not unique on this list

how old is the head of the CD company you are dealing with?
how old is your boss?
how old are you?

andy, please know that i don't intend the above questions
to be anything other than pointed and direct
in order to emphasise the extent
of the false image
of Parkinson's

now that i've got all of that off my chest [!]
i can say with enthusiasm that i am impressed as all heck
with the concept of your company's presence on the World Wide Web!

the more Parkinson's information that's out there
the better for all concerned


your cyber-sibling

janet

a new voice: http://www.newcountry.nu/pd/members/janet/index.htm
51/10 - almonte/ontario/canada - [log in to unmask]
janet paterson