-----Original Message----- From: Automatic digest processor <[log in to unmask]> To: Recipients of PARKINSN digests <[log in to unmask]> Date: Thursday, August 13, 1998 11:14 PM Subject: PARKINSN Digest - 13 Aug 1998 >There are 18 messages totalling 726 lines in this issue. > >Topics of the day: > > 1. NON PD! Re: You just gotta laugh! > 2. NON PD Re: A little humor > 3. Tasmar,Sinemet,and Sinemet CR Dosages Guidelines > 4. Social Security Disability (4) > 5. Vitamins (2) > 6. Fw: Controlled Protein Diet (3) > 7. Confusion (2) > 8. Reducing drugs and on/off > 9. Revisited Confusion (2) > 10. Revisited Confusion / gina / hilary / non-physical symptoms > >---------------------------------------------------------------------- > >Date: Thu, 13 Aug 1998 16:59:28 EDT >From: KEn Becker <[log in to unmask]> >Subject: NON PD! Re: You just gotta laugh! > >Darwin, you should not make LIGHT of Edison's contribution to our lives. Can >you imagine having to watch TV or use a computer by candlelight? Okay, maybe >that's no big deal, but can you imagine driving 75MPH in your car and trying >to keep candles lit, so you can see the road? ...........I didn't think >so.......... >[log in to unmask] > >------------------------------ > >Date: Thu, 13 Aug 1998 17:02:56 EDT >From: KEn Becker <[log in to unmask]> >Subject: NON PD Re: A little humor > >Just tell him NOT to take along a spy satellite, even if they are willing to >bump him up to the "first class" section......TRUST ME! >[log in to unmask] > >------------------------------ > >Date: Fri, 14 Aug 1998 00:01:43 +0300 >From: Gil Lieberman <[log in to unmask]> >Subject: Tasmar,Sinemet,and Sinemet CR Dosages Guidelines > >Dear Bonnie, >Thanks very much for your detailed 12 Aug 1998 response to my questions >regarding guidelines. >I did not initially bring these questions to Aliza's neurologist for the >following reasons: >I expected to get a more rapid and informative response by posing the questions >on this list than if I called or wrote to Aliza's Neurologist.Within >hours,Ron Vetter >sent us guidelines from Roche,Bob Cowan sent very useful info,then your >excellent response, >and Brian Collins' enlightening insights.Now we have information to ask him >intelligent >questions.There is an additional problem here for us,since Tasmar has not >yet been >approved for use here in Israel.Thus our primary care physician doesn't want >any part of >it.Thus any recommended tests to check for contra-indications such as liver >tests have to be >handled through Aliza's neurologist who prescribed the Tasmar whereas >normally tests are >ordered through her readily-accessible primary care physician. > >Re my first question about taking Tasmar simultaneously with Sinemet >CR,Aliza's neurologist >did not give us guidelines at all when he first prescribed taking two pills >to start and then >going to three.Since she was taking Sinemet CR at 5 hour intervals,it seemed >logical to >synchronize the Tasmar with the Sinemet and therefore take them together.At >the second meeting, >after taking the Tasmar for about four weeks,and noting that there was >really no noticeable >improvement except for apparently sleeping better,he suggested taking six >pills per day.When I >asked about taking it with the Sinemet CR 5 times a day ,he agreed without >comment.After two >days of doing this Aliza began to feel shaky after about three hours.We >thought two things: >1.The Tasmar is not making the levadopa last six hours. >2.Perhaps,there was an overdosage. >We did not associate Aliza feeling shaky with diskinesia which up till now >she has not felt. >Since yesterday morning,she is taking Tasmar with her 7:00AM Sinemet CR and >then at 1:00PM >and 7:00PM and felt better in the afternoon which supports the overdose >hypothesis. >However,last night,she slept very poorly. > >Re my second question on how one knows to reduce Sinemet CR and/or Sinemet >when taking Tasmar, >Aliza does not have ON/OFF times per se.Her major symptoms are >Bradykinesia(slowness) and poor >balance all the time.Her Neurologist did not suggest any reductions.Based on >the Roche guidelines, >she should not, since she is well below 600mg of effective levadopa per day. > >Re my third question on when one knows the Tasmar dosage is too much or too >little,it would be >helpful to have a detailed list of what side-effects to look for. > >Re my fourth question of the best times to take three Tasmar pills,the Roche >guidelines >clearly state a six hour interval with the first pill of the day with the >Sinemet. >What do you mean by "GENERAL" information?What can we expect the doctor to >say?He scarcely knows >Aliza and does not have any magic information up his sleeve. > >Re my fifth question re when to take six pills,the Roche guideline is to >take two pills >together at six hour intervals.This means in Aliza's case that she does not >have the benefit >of the Tasmar from 1AM to 7AM assuming its benefit lasts six hours.It is not >clear why this >should be better than spreading the six pills over four hour intervals >around the clock. > >Re my sixth question,as to how long a Tasmar pill lasts,the conclusion that >it remains in the >system 4-6 hours based on a half-life of 2-3 hours assumes a linear decay in >the system. >It is interesting that if the decay was exponential,then if the half-life is >3 hours,then after >six hours there would still be a quarter left rather than nothing left as >predicted by the linear >assumption.After 12 hours,there would still be one sixteenth left.So the >linear decay is very >significant in avoiding cumulative effects due to successive pills. > >Re my seventh question,as to what PD symptoms are most commonly helped,it >would be interesting to >know which specific symptoms are helped by enhancing Sinemet and which are >not.Aliza's Neurologist >told us that her slowness and loss of balance are not promising symptoms to >be helped.So maybe her >use of Tasmar is a wasted expensive effort. > >Re my eighth question,as to common over-dosage effects,it would be helpful >to have a more >comprehensive list of over-dosage effects than those you mentioned.What lead >us to think >Aliza was over-dosed with five Tasmar pills was her feeling shaky/jumpy.Is >this a reasonable >effect?Such a feeling could be due to a variety of drug interactions,for >example.In Aliza's case, >she is taking 11 different drugs. > >Bonnie,your responses to my questions are very helpful. >We will try to develop an "open-line" with Aliza's new neurologist as you >suggested. >I was already rebuffed once by him for taking up too much of his time. >I sent him faxes which his office didn't give him. >But he did promise to provide answers to written questions. >Because of the problem of accessibility,we are considering switching to >another PD specialist >who has a nurse and social worker available for patient support. > >Thanks again. >Gil Lieberman,CG for Aliza > >------------------------------ > >Date: Thu, 13 Aug 1998 15:25:07 -0600 >From: "Tebay, Wendy M" <[log in to unmask]> >Subject: Re: Social Security Disability > >How about this idea... I can't think of the name of the organization, but >there's a national group, who's members consist of former business leaders >who are now retired, and who wish to still keep busy, who either volunteer >their time and expertise, or maybe do it for a small fee, to new start-up >and small businesses. Why don't some of the former lawyers, government >employees, or whoever else might have the right experience and background >(and motivation and ability), and who are maybe now PWPer's themselves, and >perhaps subscribe to this list, get together and brainstorm on how a similar >organization of retired volunteers, familiar with the social security and >disability systems, could maybe be formed. Or perhaps, this sort of thing >might be a job for some of our national PD organizations to initiate and >coordinate. Just a thought. > >Personally, I'm also looking at various business and investment ideas, which >I intend to make use of, so that down the line, when it's needed and I am >officially "disabled", I can have enough income from these other sources >which I've established, so the issue of whether or not I can get SSDI will >be a moot point. I plan to have things set up so that if I receive these >benefits, they will merely supplement what I've already got coming in, I >won't be solely dependent on them for my survival. Basically, I'm looking >toward being financially independent, and having set up sources of passive >income that will take care of all my needs and more. I'm only 34 and I >refuse to live on a fixed, piddly income for the next 30 or more years, and >on top of that, have to put up with someone giving me bull because I dared >to try and claim what should be rightfully mine. I want to have enough >money to live on and more, so that I can devote myself, with whatever >functional time I may have left in me, to making a difference in the world >on issues which concern me, rather than having my life sucked out of me >because of having to deal with this sort of pointless b.s. I'm not the >type who will ever succumb to playing the victim role, I'm too stubborn for >that, and I don't think any of us should have to either. We are NOT >victims, but we ARE a force to be reckoned with! > >Wendy Tebay > >------------------------------ > >Date: Thu, 13 Aug 1998 17:35:11 -0400 >From: Terry Hopping <[log in to unmask]> >Subject: Vitamins > >I suppose that this subject has been discussed here numerous times but I >want to know if anyone has had any experience good or bad with vitamins >mitigating the symptoms of PD? There is a lot of litrature out there both >pro and con on the subject and it is conviencing from both sides. I have >never been one to take food suplements but now that I am limiting my >comsumption of protein to enhance the absorbsion of sinemet I was wondering >if there was any benifit both from a neutrician and a PD standpoint ? > >Terry > >------------------------------ > >Date: Thu, 13 Aug 1998 15:39:46 -0600 >From: "Tebay, Wendy M" <[log in to unmask]> >Subject: Social Security Disability > >Speaking of organizing a list of volunteers, I think I do recall that around >Philadelphia, there was a group of lawyers, who volunteered their time >toward helping people with their EEOC cases (e.g., someone unfairly treated >on the job, or even denied a job, due to disability). Maybe there's a way >to use the Americans with Disabilities Act to perhaps bring suits against >the government itself in certain cases, such as when benefits are wrongfully >denied. (Might help also get some good lawyers involved if they thought >tthere was some money to be made on a lawsuit). Just another thought. > >Wendy > >------------------------------ > >Date: Thu, 13 Aug 1998 16:45:07 -0500 >From: james jones <[log in to unmask]> >Subject: Fw: Controlled Protein Diet > >This is a multi-part message in MIME format. > >------=_NextPart_000_0065_01BDC6D9.BA649A00 >Content-Type: text/plain; > charset="iso-8859-1" >Content-Transfer-Encoding: quoted-printable > > >-----Original Message----- >From: james jones <[log in to unmask]> >To: [log in to unmask] <[log in to unmask]> >Date: Thursday, August 13, 1998 4:35 PM >Subject: Controlled Protein Diet > > >I've seen nothing in this forum about a controlled protein diet. It was = >originally thought that protein should be consumed before bedtime only = >but that was changed to maintenance of a 7/1 carbo/protein ratio for all = >meals. The theory is that there is an amino acid contained in protein = >that interferes with levadopa transmission across the blood brain = >barrier. My spouse, a PWP, tried it for several months before she = >became very ill with other complications. It seemed to make the Sinemet = >effect more predictable. There were still on-off periods but they were = >more predictable. >The diet is not hard to administer. There is a company called Balance = >Nutrition PO box 9327, Providence RI 02940 that distributes several = >products of the proper ratio. (I have no affiliation with that = >company.) Plain ole Dairy Queen soft ice cream is, coincidentally, a = >7/1 ratio product also. You will find that most normal diets are about = >25% higher in protein than this ratio so you just need to read the = >labels and, maybe add some veggies to what you normally eat. For more = >info including technical articles see www.balancenutrition.com. I am = >[log in to unmask] > >------=_NextPart_000_0065_01BDC6D9.BA649A00 >Content-Type: text/html; > charset="iso-8859-1" >Content-Transfer-Encoding: quoted-printable > ><!DOCTYPE HTML PUBLIC "-//W3C//DTD W3 HTML//EN"> ><HTML> ><HEAD> > ><META content=3Dtext/html;charset=3Diso-8859-1 = >http-equiv=3DContent-Type><!DOCTYPE HTML PUBLIC "-//W3C//DTD W3 = >HTML//EN"> ><META content=3D'"MSHTML 4.71.1712.3"' name=3DGENERATOR> ></HEAD> ><BODY bgColor=3D#ffffff> ><DIV> </DIV> ><DIV><FONT face=3DArial size=3D2><B>-----Original = >Message-----</B><BR><B>From:=20 ></B>james jones <<A=20 >href=3D"mailto:[log in to unmask]">[log in to unmask]</A>= >><BR><B>To:=20 ></B><A = >href=3D"mailto:[log in to unmask]">[log in to unmask]</A>=20 ><<A=20 >href=3D"mailto:[log in to unmask]">[log in to unmask]</A>>= ><BR><B>Date:=20 ></B>Thursday, August 13, 1998 4:35 PM<BR><B>Subject: </B>Controlled = >Protein=20 >Diet<BR><BR></DIV></FONT> ><DIV><FONT color=3D#000000 size=3D2>I've seen nothing in this forum = >about a=20 >controlled protein diet. It was originally thought that protein = >should be=20 >consumed before bedtime only but that was changed to maintenance of a = >7/1=20 >carbo/protein ratio for all meals. The theory is that there is an = >amino=20 >acid contained in protein that interferes with levadopa transmission = >across the=20 >blood brain barrier. My spouse, a PWP, tried it for several months = >before=20 >she became very ill with other complications. It seemed to make = >the=20 >Sinemet effect more predictable. There were still on-off periods = >but they=20 >were more predictable.</FONT></DIV> ><DIV><FONT color=3D#000000 size=3D2>The diet is not hard to = >administer. There=20 >is a company called Balance Nutrition PO box 9327, Providence RI 02940 = >that=20 >distributes several products of the proper ratio. (I have no = >affiliation=20 >with that company.) Plain ole Dairy Queen soft ice cream is,=20 >coincidentally, a 7/1 ratio product also. You will find that most = >normal=20 >diets are about 25% higher in protein than this ratio so you just need = >to read=20 >the labels and, maybe add some veggies to what you normally eat. = >For more=20 >info including technical articles see <A=20 >href=3D"http://www.balancenutrition.com">www.balancenutrition.com.</A>&nb= >sp; I am=20 >[log in to unmask]</FONT></DIV></BODY></HTML> > >------=_NextPart_000_0065_01BDC6D9.BA649A00-- > >------------------------------ > >Date: Thu, 13 Aug 1998 18:10:01 -0400 >From: Terry Hopping <[log in to unmask]> >Subject: Re: Fw: Controlled Protein Diet > >Thanks James for your answer ... I do feel that a controled protein diet >has helped me with my sinemet absorbtion . I am going to look at the >website you suggested this evening at home. > >Terry > > > > > > >At 04:45 PM 8/13/98 -0500, you wrote: >> >>-----Original Message----- >>From: james jones <[log in to unmask]> >>To: [log in to unmask] <[log in to unmask]> >>Date: Thursday, August 13, 1998 4:35 PM >>Subject: Controlled Protein Diet >> >> >>I've seen nothing in this forum about a controlled protein diet. It was >originally thought that protein should be consumed before bedtime only but >that was changed to maintenance of a 7/1 carbo/protein ratio for all meals. > The theory is that there is an amino acid contained in protein that >interferes with levadopa transmission across the blood brain barrier. My >spouse, a PWP, tried it for several months before she became very ill with >other complications. It seemed to make the Sinemet effect more >predictable. There were still on-off periods but they were more predictable. >>The diet is not hard to administer. There is a company called Balance >Nutrition PO box 9327, Providence RI 02940 that distributes several >products of the proper ratio. (I have no affiliation with that company.) >Plain ole Dairy Queen soft ice cream is, coincidentally, a 7/1 ratio >product also. You will find that most normal diets are about 25% higher in >protein than this ratio so you just need to read the labels and, maybe add >some veggies to what you normally eat. For more info including technical >articles see www.balancenutrition.com. I am [log in to unmask] >> >>Attachment Converted: "c:\eudora\attach\FwContro.htm" >> > >------------------------------ > >Date: Thu, 13 Aug 1998 16:21:44 -0600 >From: "Kathrynne Holden, MS,RD" <[log in to unmask]> >Subject: Re: Vitamins > >Dear Terry, >There's no conclusive proof that any particular vitamin or mineral will >mitigate the symptoms of PD, unfortunately. Vitamin E has been studied in that >regard, but a large, well-designed study showed no slowing of PD progression >with use of vitamin E supplements. However, some physicians disagree with >current research, and continue to prescribe E for their patients. > >Of greater concern, from my point of view as a registered dietitian, is the >fact that PWP often change the kind and/or amount of foods they eat, such that >vital nutrients are missing from their diet for long periods of time. This can >cause frank deficiencies; and some of these deficiencies' symptoms are very >similar to some of the symptoms of PD. I suspect that a number of PWP have an >underlying nutrient deficiency that goes undetected, because few are referred >to registered dietitians. I routinely ask my clients for a 3-day food record, >as well as other information; and 9 times out of ten I find serious dietary >lack. > >Most of my clients would benefit from a multi-vitamin/mineral daily, along with >a calcium supplement. Those over age 50 who are not anemic should use a >supplement that contains no iron, or only a very small amount (One-A-Day >50-Plus, Centrum Silver) as iron may play a role in heart disease in later >years. > >Best regards, >Kathrynne > >Terry Hopping wrote: > >> I suppose that this subject has been discussed here numerous times but I >> want to know if anyone has had any experience good or bad with vitamins >> mitigating the symptoms of PD? There is a lot of litrature out there both >> pro and con on the subject and it is conviencing from both sides. I have >> never been one to take food suplements but now that I am limiting my >> comsumption of protein to enhance the absorbsion of sinemet I was wondering >> if there was any benifit both from a neutrician and a PD standpoint ? >> >> Terry > > > >-- >Kathrynne Holden, MS, RD >"Nutrition you can live with!" >Medical nutrition therapy >http://www.nutritionucanlivewith.com/ >Tel: 970-493-6532 // Fax: 970-493-6538 > >------------------------------ > >Date: Thu, 13 Aug 1998 18:45:22 -0400 >From: Debbie White <[log in to unmask]> >Subject: Confusion > >My mother Joyce (68/1 year) told me tonight that another thing that's >happening to her is that she can't seem to get anything done. She will >start something and then all she seems to be able to do is push papers >around. I think this is a form of confusion about what to do. > >Does anyone else have this problem of not being able to get things done >because it's not always clear HOW to? Thanks > >Debbie White >[log in to unmask] > >------------------------------ > >Date: Thu, 13 Aug 1998 18:43:32 -0400 >From: Debbie White <[log in to unmask]> >Subject: Reducing drugs and on/off > >I wrote last night because my mother Joyce (68/1 year) is having a tough >time right now and her doctor suggested that she may have some other >Parkinsonian disease. After receiving reading some informative pieces >suggested by some on this list, it seems to me more and more that she has >PD. > >She is not, however, having great success with her drugs. Her doctor is >reducing her Requip so that she is off it completely within a week (so that >she can start something else). She started today reducing her dosage from >21 mg./day (7 mg 3x/day) to 5mg in the morning, 5 mg in the afternoon, and >2 mg. at night. She hasn't taken the last dosage because she's having a >terrible day with internal tremors and wants to talk to the doctor (MDS) >about taking 5 mg. tonight rather than 2 mg. > >First, this seems to indicate that the drugs ARE doing her some good. > >What I think is confusing the issue is that my mother doesn't (never has) >have clear on/off periods. However, I don't think one can conclude from >this that the drugs aren't working. So my next question is: Isn't it >possible to say the drugs are working without feeling them kick in? Any >thoughts? >Debbie White >[log in to unmask] > >------------------------------ > >Date: Thu, 13 Aug 1998 18:50:18 EDT >From: Delda White <[log in to unmask]> >Subject: Re: Social Security Disability > >In a message dated 98-08-13 18:46:01 EDT, you write: > >>a list of volunteers, > >Wendy -- I think the organization of retirees you're thinking of (in your >earlier post) is SCORE -- Service Corps of Retired Executives. Good luck with >your plans -- I wish you all the success in the world. Delda White CG Bob >66/1 > >------------------------------ > >Date: Thu, 13 Aug 1998 20:38:35 -0400 >From: Jed Blue <[log in to unmask]> >Subject: Re: Confusion > >Yes, Yes, Yes! >This is a problem that I have had lately that is getting rapidly >increasingly worse. Lately just sorting out and paying the monthly >bills ( about 8 all together) is an all night sit up job... > >Hilary Blue (49/16) > >------------------------------------------------------------------- >Debbie White wrote: >> >> My mother Joyce (68/1 year) told me tonight that another thing that's >> happening to her is that she can't seem to get anything done. She will >> start something and then all she seems to be able to do is push papers >> around. I think this is a form of confusion about what to do. >> >> Does anyone else have this problem of not being able to get things done >> because it's not always clear HOW to? Thanks >> >> Debbie White >> [log in to unmask] > >------------------------------ > >Date: Thu, 13 Aug 1998 20:47:29 -0400 >From: Jed Blue <[log in to unmask]> >Subject: Re: Fw: Controlled Protein Diet > >So is plain old canned sweet corn.... >Hilary Blue > >P.S. I try to stick to this diet and it seems to work for me - It is >very obvious when I eat too much protein. > >WHich reminds me - what about aspartame (Nutrasweet). DOes anyone know >how that affects sinemet absorption? > >---------------------------------------------------------------------- >> james jones wrote: >> >> >> -----Original Message----- >> From: james jones <[log in to unmask]> >> To: [log in to unmask] <[log in to unmask]> >> Date: Thursday, August 13, 1998 4:35 PM >> Subject: Controlled Protein Diet >> > Plain ole Dairy Queen soft ice cream is, coincidentally, a >> 7/1 ratio product also. >> I am [log in to unmask] > >------------------------------ > >Date: Thu, 13 Aug 1998 21:09:27 EDT >From: "Gina Cass." <[log in to unmask]> >Subject: Re: Revisited Confusion > >Hi Hilary: >I have the confusion thing also. Its like I get so overwhelmed and can't keep >things straight. I try writing lists of what to do but I get lost quickly. >My husband does understand about these things. I'm not sure I always do. > >I have been shaking very bad since yesterday. My mind took a trip and feels >empty. I feel that I am becoming a burden to friends and family. I seem to >spend more alone time, and try to ask for help. I went to a Big Band concert >today. I had trouble going down the ramp. People on all sides, I started to >panic as all of the people pushed me. Well, stress took over and I was a >moving mess. Sat for about an 1 1/2 and when it came time to get up, I could >babely do that. I should have stayed home. > >I do have an appointment with a replacement Doctor in Chicago . The >appointment will be coming up very soon. >I just have a boat loud of feelings rolling around. I don't mean to dump on >you Hilary. You just seem to have some of it together. I know I losing some >of it. Becoming more Paranoid, more hallucinations, more like I don't fit >again. I don't know if it is the Parkinson's or not. >Oh well >Thanks for listening. >Gina >TTFN > >------------------------------ > >Date: Thu, 13 Aug 1998 21:25:46 -0400 >From: Camilla Flintermann <[log in to unmask]> >Subject: Re: Revisited Confusion > >Gina-- I have to wonder if the paranoia and hallucinations you mention are >new side effects, or just getting worse? As you know, both those are >usually due to >medication--perhaps too much--when you see the new doc be sure to tell him >about that part of it. Peter had a terrible paranoid episode last summer >that put him in hospital and in need of home health care for 6 weeks after >he got home--it was because his neuro started him on the then-new Mirapex, >and didn't cut back on his Sinemet, and he got an overload. Pretty scary! >We got off Mirapex in a hurry, and he's done OK on Requip--but last week >began to have hallucinations (very mild) again, and it seems to have been >due to a new drug,Detrol, for overactive bladder problems. We've stopped it >now, and he's better. So Gina, watch the meds carefully--I don't know what >you take, but they can cause problems as well as cure them! > >SNIPPED > >>I do have an appointment with a replacement Doctor in Chicago . The >>appointment will be coming up very soon. >>I just have a boat loud of feelings rolling around. I don't mean to dump on >>you Hilary. You just seem to have some of it together. I know I losing some >>of it. Becoming more Paranoid, more hallucinations, more like I don't fit >>again. I don't know if it is the Parkinson's or not. >>Oh well >>Thanks for listening. >>Gina >>TTFN > > > > > > for YOU from Camilla > <[log in to unmask]> > > http://www.newcountry.nu/pd/members/camilla/one.htm > > \\|// > | (o o) > |------------------oOO--(_)--OOo---------------------- > When you get to the end of your rope, tie a knot, > Hang on, and swing! > ----------------------------Oooo--------------------- > oooO ( ) > ( ) ) / > \ ( (_/ > \_) > >------------------------------ > >Date: Thu, 13 Aug 1998 22:05:52 EDT >From: KEn Becker <[log in to unmask]> >Subject: Re: Social Security Disability > >Good for you, Wendy, and your "CAN DO" attitude. You are a good example for >all of us. Hopefully you are over preparing which is a good idea in times >like these. >The organization you referred to is "SCORE" The CORE stands for "Corps Of >Retired Executives" I don't remember the what the "S" represents but someone >will, I am sure. I also support your idea of the devotional prayers on the >16th. As my son, Andrew says "There is no such thing as an excessive amount >of prayer" Who can argue with that logic? >[log in to unmask] > >------------------------------ > >Date: Thu, 13 Aug 1998 23:03:06 EDT >From: Janet Paterson <[log in to unmask]> >Subject: Re: Revisited Confusion / gina / hilary / non-physical symptoms > >hi all > >gina wrote: >>I have the confusion thing also. Its like I get so >>overwhelmed and can't keep things straight. I try >>writing lists of what to do but I get lost quickly. My >>husband does understand about these things. I'm >>not sure I always do. >>I have been shaking very bad since yesterday. My >>mind took a trip and feels empty. I feel that I am becoming >>a burden to friends and family. I seem to spend more alone >>time, and try to ask for help. I went to a Big Band concert >>today. I had trouble going down the ramp. People on all >>sides, I started to panic as all of the people pushed me. >>Well, stress took over and I was a moving mess. Sat >>for about an 1 1/2 and when it came time to get up, I >>could babely do that. I should have stayed home. >> I do have an appointment with a replacement Doctor in >>Chicago . The appointment will be coming up very soon. >>I just have a boat loud of feelings rolling around. I don't >>mean to dump on you Hilary. You just seem to have >>some of it together. I know I losing some of it. Becoming >>more Paranoid, more hallucinations, more like I don't fit >>again. I don't know if it is the Parkinson's or not. >> Oh well Thanks for listening. Gina TTFN > >the fact that both you and hilary are aware of these feelings >of confusion is a great plus, in my humble opinion > >all of the feelings and symptoms you describe >can be related to pd meds and their interactions >with each other and their interactions with other meds > >the psychological, emotional, and cognitive effects of pd and its meds >need to be dealt with in the same objective and compassionate way >[i hope!] >that our physical symptoms are addressed > >any emotional stress can exacerbate our pd symptoms >and thus contribute to a downward spiral of anxiety > >gina, it sounds to me like you started feeling a bit worse >about things in the past couple of days > >if so, can you or your husband relate this to any recent change >in your meds routine, or your sleeping habits, or your diet, >or.... some other change in your day to day life? > >i'm glad to hear that you will be seeing a new doctor soon >a day by day record of meds and activities and feelings >could be very helpful for the new doc as well as you > >maybe it's something you and your husband >could tackle together in the days leading up to your appointment? > >try to remember that those feelings of confusion and not belonging >are bound to be med related and indications of adjustments >that probably need to be made > >you are not alone, gina and hilary >if there is any place that you belong >[along with those you both care about] >one is here with me and the rest of our cyber family >no matter what >'there, but for grace .." > > >your cyber-sis > >janet > >a new voice: http://www.newcountry.nu/pd/members/janet/index.htm >51/10 - almonte/ontario/canada - [log in to unmask] >janet paterson > >------------------------------ > >End of PARKINSN Digest - 13 Aug 1998 >************************************ >