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Date: Fri, 21 Aug 1998 17:03:52 -0500
From: Kelly Abbett <[log in to unmask]>
To: [log in to unmask]
Cc: [log in to unmask]
Subject: Barbara Schirloff
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Action Alert
August 21, 1998
NOW IS THE TIME TO SEND LETTERS TO THE APPROPRIATIONS MEMBERS!
To ensure that legislators hear the demand for increased funding for=
=0AParkinson's research, we need to send as many letters as possible to m=
embers=0Aof the House and Senate Labor-HHS Appropriations Subcommittees. =
We don't have=0Amuch time: the Senate returns on August 31, and the Hou=
se returns on=0ASeptember 9. The impact of a mailbox full of letters fro=
m the Parkinson's=0Acommunity cannot be underestimated. We can make a di=
fference!
Hopefully you have met with your Members of Congress in the district=
and=0Ahave succeeded in working with the media to get the message out th=
at now is=0Athe time to increase Parkinson's research funding. Now we ne=
ed to flood the=0Amembers of the Labor-HHS Appropriations Subcommittees w=
ith letters demanding=0Athat Congress fulfill the promise of the Udall Ac=
t by appropriating at least=0A$100 million for Parkinson's-focused resear=
ch.
* A sample letter to members of the Labor-HHS Appropriations Subcommi=
ttees=0Ais attached for you to use as a guideline. You may wish to inclu=
de the main=0Apoints of our message in your own letter, but be sure to pe=
rsonalize the=0Aletter with your story in order to make it stand out amon=
gst the many letters=0Athat Members of Congress receive daily.
* You only need to write one letter. Simply individualize the letter=
to=0Aeach of the members of the Labor-HHS Appropriations Subcommittees b=
y changing=0Athe address and salutation on your form letter using the att=
ached list.
* Please send us copies of your letters so that we can keep track of=
=0Acorrespondence with members of the Labor-HHS Appropriations Subcommitt=
ees.
* Mail: Parkinson's Action Network
818 College Avenue, Suite C
Santa Rosa, CA 95404
* Fax: 707-544-2363
* Ask family, friends, Parkinson's activists who may not receive this=
=0Amailing, and other members of your community to do the same. More let=
ters=0Awill create a greater impact!
* Thank you and keep up the good work!! Our collective and individua=
l=0Aactions do make a difference and will result in increased funding for=
=0AParkinson's research.
SAMPLE LETTER TO MEMBERS OF THE
LABOR-HHS APPROPRIATIONS SUBCOMMITTEES
=
=0AAugust [##], 1998
[Member's Address]
[(see attached list)]
[Salutation]:
I [my husband/wife/parent etc.] suffer from Parkinson's disease, a=
=0Aprogressive neurological disorder that destroys brain cells controllin=
g motor=0Afunction. Current treatments only partially alleviate the resu=
lting=0Astiffness, tremor, and slowness of movement. Eventually Parkinso=
n's leaves=0Aits victims unable to walk, to talk, even to move. [Revise =
for your personal=0Astory]
The nationwide Parkinson's disease research program has long suffere=
d=0Afrom an inadequate federal research investment. Direct research on=
=0AParkinson's disease has received less than $30 million a year for deca=
des, and=0Ait received only $35 million last year -- $35 per patient for =
the million=0AAmericans suffering from this terrible disorder. This lack=
of funding results=0Ain delayed breakthroughs, unnecessary suffering, an=
d a total national cost of=0Aover $25 billion annually.
The Congress responded last year by enacting the Morris K. Udall=0AP=
arkinson's Disease Research Act (P.L. 105-78), which was signed into law =
on=0ANovember 13, 1997. Now Congress must fulfill the promise to increas=
e funding=0Afor Parkinson's-focused research. The National Institutes of=
Health (NIH)=0Acurrently plans to spend far less than $100 million on Pa=
rkinson's- focused=0Aresearch in FY 1999. The NIH says that it will spen=
d $106 million in FY 1999=0Aon Parkinson's research, but $62 million of t=
hat amount is allocated to=0A"related" research that will not be spent on=
Parkinson's-focused grants as the=0AUdall Act requires.
I ask you to support full funding of the Udall Act by ensuring that =
the=0AFY 1999 appropriation for the NIH includes at least $100 million in=
=0AParkinson's-focused research, as provided in the Udall Act.
Sincerely,
[your name, organization, and address]
MEMBERS OF THE SENATE AND HOUSE
LABOR-HHS APPROPRIATIONS SUBCOMMITTEES
SENATE:
Address:
The Honorable [First] [Last]
United States Senate
Washington, DC 20510
Salutation:
Dear Senator [Last Name]:
(Except for Chairman)
* Arlen Specter, Chairman (R-PA)
Dear Mr. Chairman:
* Thad Cochran (R-MS)
* Slade Gorton (R-WA)
* Christopher (Kit) Bond (R-MO)
* Judd Gregg (R-NH)
* Lauch Faircloth (R-NC)
* Larry E. Craig (R-ID)
* Kay Bailey Hutchison (R-TX)
* Tom Harkin, Ranking Member (D-IA)
* Ernest F. Hollings (D-SC)
* Daniel K. Inouye (D-HI)
* Dale Bumpers (D-AR)
* Harry Reid (D-NV)
* Herb Kohl (D-WI)
* Patty Murray (D-WA)
HOUSE:
Address:
The Honorable [First] [Last]
United States House of Representatives
Washington, DC 20515
Salutation:
Dear Representative [Last Name]:
(Except for Chairman)
* John Edward Porter, Chairman (R-IL)
Dear Mr. Chairman:
* C.W. Bill Young (R-FL)
* Henry Bonilla (R-TX)
* Ernest J. Istook (R-OK)
* Dan Miller (R-FL)
* Jay Dickey (R-AR)
* Roger F. Wicker (R-MS)
* Anne Meagher Northup (R-KY)
* David Obey, Ranking Member (D-WI)
* Louis Stokes (D-OH)
* Steny H. Hoyer (D-MD)
* Nancy Pelosi (D-CA)
* Nita M. Lowey (D-NY)
* Rosa DeLauro (D-CT)
--------------------------------
Parkinson's Action Network
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