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Barbara Mallut wrote: > > Craig..... > > The following information is meant as a "For what it's > worth," ONLY. > > Admittedly, until yesterday I knew very little about the fine > points of Tasmar and it's relationship to Sinemet since I > take only the latter. > > However, yesterday the guest speaker at my PD support > group was a rep from Roche Pharmaceuticals, and Roche > is the creator/inventor of Tasmar, PLUS an RN from > ST. John's Hospital, in Oxnard, CA, who's heavily involved > in the hospital's movement disorder department and is very > "up" on the latest PD drugs. The purpose of their visit to our > group was to educate us about Tasmar. > > One thing that really sticks in my mind from the > discussion was the insistence that IF one was to take > Tasmar along with Sinemet, one absolutely MUST not > take Tasmar with Sinemet CR as the time release effect > of the CR tablet interferes with the Tasmar 's absorption > (or something like that) <wishing I'd paid more attention > to what the full discussion on the reason for that was>. > > The Rote rep AND the RN treated that comment 'bout > not taking the Tasmar along with Sinemet CR like it was the > Gospel, but reiterated the plain, non-time-release Sinemet > was compatible and is to be taken with Tasmar. > > That said, I've got one of the many brochures the Roche rep > passed out to us yesterday, right in front of me now, and IT > says here in print, "Tasmar should always be taken as part > of a treatment program that includes carbidopa/levodopa > (Sinemet or Sinemet CR)" <word-for-word quote> How's THAT > for making us all confused, if not totally crazy??? > > My feeling is that IF something's working for YOU, and > YOU'RE content with the outcome (after all, it's YOUR body > that has PD, so who could better know how YOU feel?), then > go with what makes YOU feel comfortable. > > Barb Mallut > [log in to unmask] > > ---------- > From: Parkinson's Information Exchange on behalf of Craig Mellinger > Sent: Sunday, August 23, 1998 10:24 AM > To: Multiple recipients of list PARKINSN > Subject: Parkie > > BrucePLease ad this additonal bit of ino to what I furnished last > night.I only went to the Robert Wood Johnson Center once. He follow > visit asset up for 4 months later,e got a call that it would have to be > changed to another date ine futue makingit 8 months between visits.The > reasonwas valid. THey went from 4 nueros seeing patients to 2. retired > and one went back into rsearch.So my wife contacted some service out of > Morristown and they recommended Dr. Kenneth Cerney who was a neuro > specialising in PD.This is what I am now taking Sinemet CR 50x200 > 1 1/2 tabs x 3 times a day.Eldepryl 2x5mg twice a day,Artane(generic) > 1x3 2mg daily,and Tasmar 1x3 200 mgs daily.I had read something about > Tasmar that struck me as being helful for me. So during one of my > appointments last winter I asked him about trying it.After checking some > thing in his files he said ok. But he took me off the Mirapex.When you > read the postings on the meds people are taking it reads like the recipe > for alphabet soup.It sounds like there are about a dozen or so meds > available for treating the symptons of PD.And dependibng upon where you > stand they are all as good or as bad in treating PD. Am I correct in my > assumption.Craig Barbara. Thanks for quick response. Before Tasmar I didn't have any problems with my balance.Since switching I am constantly falling backwards. It's amazing how many things you do with one or two steps backward.If you are cutting the lawn and you getting into a corner where you take one or two steps,WHAM down you go.In a tight kitchen and you are helping out.So you move out out of the way,WHAM.Iwas going dow, easily 6 times a day. I had a visit to an othopedic doctor on a problem with my shoulder and right arm.So he put it into a series of range of motion excercises and heard something also. So off to the X-Ray dept where it shows some bone chips.I got a shot of cortizone that helped for a day or so I have an appt to see him in the begining of Sept.I think he may suggest surgery.What say you to that.Craig 60/2.5.