Communication problems, such as those mentioned (speaking, writing,
thinking, typing, organizing thoughts) can indeed be problems associated
with PD.
Changes in speech and voice are often the first noticable sign of PD.
With PD the muscles in the throat, just as the muscles of the arms and
legs, are affected which results in speech and/or swallowing difficulties.
To improve the quality of the voice and to PREVENT choking, it is
recommended to have an evaluation by a Speech Pathologist who can then
teach you exercises to improve the muscle tone and flexibility of muscles
used for speech and swallowing. FYI, we (NPF) have a new updated (free)
book available on Speech and Swallowing. The book is called "Speaking
Out". To obtain a copy, please call us at 1-800-327-4545.
With the writing and typing difficulties, these dexterity problems can be
improved, again with certain exercises. Seeking an evaluation from an
occupational therpaist may be beneficial.
The thought processes can be affected too. Just as important as the
therapies mentioned above (by the way, physical therapy is suggested too),
"exercising" the brain is helpful. Keeping the brain as active as possible
helps stimulate the thought processes. Crossword puzzles, word games,
scrabble, card games....anything that makes you think helps to exercise the
brain. I've used game books I've purchased in book stores to show support
groups the kind of brain games to participate in.
Hopefully, by doing specific exercises for the specifc problems you have,
you will be able to improve in all these areas and if continued regularly,
maintain status quo for a longer period of time. It is impossible for
anyone to say how rapidly these or any PD problems will progress as each
and every case is different.
Bonnie Cunningham, R.N.
Patient Services Director
National Parkinson Foundation
Date: Tue, 25 Aug 1998 16:52:40 -0700
From: William Isbell <[log in to unmask]>
Subject: Are Communication Losses Typical?
This is a message to Craig Mellinger, in response to a
communication he
recently posted. But I would appreciate comments from any and all. I'm
just beginning my new life with PD and need some answers.
Craig -
Your recent message told of your inability to communicate.
Diffficulty in
presenting my ideas was my tipoff that something was wrong with me. I have
been known as a person who could spin bullstuf into a Persian carpet (to
almost quote from a recent movie). And, since I earn my living by
communicating my ideas for new scientific projects, I need to know what I
may expect in the future.
I would appreciate a description of how and, especially, how
rapidly your
problems progressed --- speaking, writing, thinking, typing, organizing
your thoughts. I need to plan now if I am to turn my duties over to other
staff members.
And for the rest of you who may read this message, are problems in
communication a "usual" part of PD? Currently, my symptoms include
mushmouth, cramped handwriting, lack of volume control, hushed voice, etc.
No tremors, no lockup. Sinemet helps. I'm back to where I was perhaps 1-2
years ago.
Bill 64/2mo.
