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Thanks for the advice, Dale!  Actually, I'm debating whether to not take my
meds prior to the SSDI hearing (in which case, I'll be stiff as a board with
horrible toe and leg cramping) or to take MORE than my usual dose of meds and
be real dyskenesic at the hearing.

I'll get rigid if I don't take ANY meds, and PD-rigidity and all the subtle
and miserably uncomfortable symptoms that come along with MY brand of
rigidity, many PD symptoms are mostly INTERNAL and much less obvious to the
uninitiated (i.e., the judge) then a wildly dyskenesic and/or dystonic Parkie
(which I'd be if I took my usual meds plus a coupla extra Sinemet prior to the
hearing.).

Tough call on which would make the strongest impression on the judge.  Either
way, I know I'm sure gonna feel rotten by the end of that hearing!!!

Oh.... and I put off getting the collagen injections into my vocal cords this
time 'round so my "normal" Parkies voice is what the judge is gonna hear
(Judge --->  "What?  WHAT?  I can't HEAR you!  SPEAK UP!"  Barb ---> I *AM*
"speaking up, as best I can!") <groan>

She'll hear it, that is, if she sit's right next to me, and listens VERY
carefully!  And it wouldn't hurt if she can lip read, and maybe also MIND
read, 'cause not only does my voice become extremely soft and faint, but I
also end up "swallowing" the ends of sentences because I run out of breath as
I speak and words get "lost" as I try to articulate.   WAAAAAA!  I miss my
collagen injections! (What, WHAT?  We can't hear ya, Barb. Speak up!)

And HEY - if my SSDI hearing was held after 2 or 3 p.m. the judge'd not only
have to contend with my wee little PD-voice, but would ALSO be confronted with
Parkie-mush-mouth-speak, as well as Parkie "brain fog."

Barb Mallut (in "brain-fog-mode" today)
[log in to unmask]




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From:   Parkinson's Information Exchange on behalf of Dale Severance
Sent:   Friday, August 28, 1998 3:19 AM
To:     Multiple recipients of list PARKINSN
Subject:        Advice for Social Security hearings  by Dale Severance

Hi Barb:  As one who represented clients before the SSA I  Have one key piece
of advice if you are making your disability claim.

Do not take your medicines before going to the hearing.  Let a friend take you
and let your physical condition without medicine speak for you.

Good luck.

Dale Severance