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I agree. In fact I think what Chairman Stevens had to say about 'earmarking' funds for specific research , even though in his case he was referring to prostate cancer, should be taken as extremely significant. And reacted to immediately. Hilary Blue ----------------------------------------------------------------- Ivan M Suzman wrote: > > Dear Bill Turenne, > > 5:20 AM Portland, Maine 9/4/98 URGENT Bulletin / Immediate > Response Requested > > Thank you for keeping us well-posted about breaking news about the > Udall bill. Your efforts are very useful and helpful to us all. > > I have just read your response to Gerry (attached below) about today's > Senate Appropriations Committee action. > > With sincere disappointment, I respectfully ask that you try to > understand how distressing your suggestion to Gerry, of waiting, and > watching what the Senate does today, feels, at least to me. But as a person with Young Onset Parkinson's (this dreadful disease > began when I was 37}, the idea of WAITING and WATCHING feels very > unsettling to me, especially at this CRITICAL time of Senate discussion > of the Udall Act's possible funding. > > Bill, I feel that faxing, telephoning, e-mailing, writing, > telegramming and ALL forms of messages to ENCOURAGE and BUILD a consensus > for EARMARKING funds for the unfunded Udall act, would build a stronger > basis for each Senator who feels that the Udall funding cannot wait any > longer! > > Years of pain and at times, desperation, especially as a Young Onset > parkinson's sufferer with a potentially limited lifespan, have taught me > that if we are quiet, we lose a growing momentum that has taken 5 years > to build. I think that our wave is just about to crest. > > So, dear friend, I respectfully submit that you are leaning "against > the tide." > > I sincerely hope you will reconsider what you have posted to Gerry, > and let us know how you feel. > Your response would be very helpful to all of us. > > Yours very sincerely, > > Ivan Suzman 48/12 > > Founder, greater Portland (Maine) Parkinson's Support Group > Member, New England Committee to Pass the Udall Bill > > Portland, Maine > > ^^^^^^WARM GREETINGS FROM^^^^^^^^^^^^^^^^^ > Ivan Suzman 48/12 [log in to unmask] > Portland, Maine Land of lighthouses 67 deg. F humid > ******************************************************************** >