Dear Edie and many other friends,
It's 330 A.M. Here is a brief update on today's TV appearance, which I
am scheduled to make, playing golf for a CURE for Parkinson's Disease.
Today, Tuesday Sept 8, I expect to hear from Dave Eid, the Sports News
Director for CBS-TV's Portland station, WGME-TV. Dave has PD going on in
a member of his own family.. I talked to Barb, one of the sports
commentators, on the phone, Sunday evening, Sept. 6th, and she told me
that Dave is considering setting up a "line-feed" NATIONWIDE. I hope that
he does this.
It seems a "line-feed" allows a local broadcast to be sent out (over a
modem line??) to any other CBS TV station. WGME-TV is 207 797-9330.
Sports news is 207 797-9099.
Even when no line-feed is set up, the videotaped sports news segment
to be filmed at Riverside Golf Course later today can still be requested
by any CBS TV station for broadcast in your local area. If you call your
local CBS TV stations, and request the Sports Editor to get the story
aired, this will help all of us PWP's.
The National Weather Service forecast from Gray, Maine calls for
scattered showers both today and tomorrow, with temperatures cooling to
the 60's.. Because this is to be an OUTDOOR film shoot, there is some
uncertainty as to whether the weather will allow the golf course shots to
be completed this afternoon.
After I talk with Dave Eid, I will post a further update.
Darwin and Hilary have already jumped in to be my biographer--as Barb
Mallut would say--"GEEZ!"
Meanwhile, keep your golf posts coming--the more locations that write me,
the bigger the story I can build about us to Dave Eid, and the more
support he would then have to set up a line-feed for this unique
Parkinson's golfing adventure.
As Maryhelen Davila posted, this opportunity could not come at a
better time to increase awareness, and help us all push for full funding
of the Udall Act, now under careful consideration in Congress.
Ivan Suzman 48/12 :-)
^^^^^^WARM GREETINGS FROM^^^^^^^^^^^^^^^^^
Ivan Suzman 48/12 [log in to unmask]
Portland, Maine Land of lighthouses 64 deg. F
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On Mon, 7 Sep 1998 19:37:46 EDT "Edie Luther." <[log in to unmask]> writes:
>Ivan - We are in the process of scheduling a CBS Baltimore interview
>to be
>aired
>the last week of Sept, This interview is to promote the Walk-a-Thon
>scheduled
>for October 3, l998, I will ask that your story be picked up by our
>tv
>affiliate.
>Richard Scher wanted to interview me, my husband and another PWP. As
>my pd is mainly inside (Most of the time I do not look like I have pd,
>even
>though I have had it for over 20 years), I have asked a young onset
>pwp to do the interview with another young onset pwp who shows the
>symtoms,
>Most people have a misconception of this disease, that it only strikes
>the
>elderly,
>Edie Luther 64/20
>
