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Many of the members of this list may know, from my previous postings, that
I have been very involved with Parkinson's Disease, starting about 3 years
ago, when one of my patients, at an Assisted Living residence, had
Parkinson's. Forty plus years ago, during my academic training, we had some
discussion about Parkinson's. My own past professional background consisted
mostly of Psychoanalytical Psychotherapy, Criminology, Police Psychology,
and College Teaching. There was little exposure to movement disorders
specifically, but some generalizations of MS and the Dementias. I did have
a good grounding in mind, body, and environmental forces working in
interaction with personality development. This was the perspective I took
to the understanding of Parkinson's.

At the aforementioned Assisted Living residence, I discovered four other
People with Parkinson's, but little, if any help from the surrounding
community. We started our own support group, with assistance from the
University of Arizona, Department of Neurology, an APDA - funded program.
In addition to the University we were connected to a young, socially active
PWP. We also became acutely aware there was little information or
specialized programs dealing with assisted living facilities for PWP in the
US. This, in spite of the growing number of folks in the senior age
population. When the facility Administrator had the chance to pursue a
career with a more proactive healthcare corporation, we had the opportunity
to design a PD program within a brand new residence, including some
implementation of physical design and physical space requirements. We now
had additional assistance from the newly established Muhammed Ali Parkinson
Research Center, in Phoenix, a NPF affiliate.

Construction of the SunBridge Assisted Living Residence was completed in
May 1998; people have been steadily moving in. Staff training and
development is on-going and assisted by the aforementioned organizations.
The residents' Library has a collection of books and articles on
Parkinson's Disease, an exercise facility, and a fully operational personal
computer with e-mail and internet links to PD web sites. The Wellness
Director, a Registered Nurse, and the Activities Director, work
cooperatively on the Parkinson program, and are dedicated to a professional
level of individualized care for all residents

In addition to regular resident status, SunBridge also offers Respite Care
as part of its "Short Stay Program". Residents may enjoy all the amenities
from a seven-day minimum stay to a three-month maximum stay without the
usual security deposit. A fully furnished studio apartment allows for folks
to "test-drive" the community.

For more information about the program, please direct correspondence to
Joan F. Thielbar, Executive Director, SunBridge Assisted Living Residence;
13810 W. Sandbridge Drive; Sun City West, Arizona 85375-4489; or telephone
(602) 584-2338; or fax (602) 584-2126; or Email  [log in to unmask]; or access
their corporate website at http://www.sunh.com.

For me, this has been a wonderful adventure in learning and interacting
with many people within the Parkinson Community, including the membership
of this list. Their interest and feedback contributed to this program; it
is our hope that this be a model for others in meeting the needs of PWP.