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Dear Ruth, I know how discouraged you must be. I have been to that point myself. I know my DBS was VERY successful and that not everyone gets the best from their surgery. Look at it this way, soon, within a year it will be accepted. I didn't find out my insurance company had changed their mind about paying for my surgery until 4 months after it was over. It was a little late then. Hang in there. You'll be able to throw that wheel chair away. >Hi everyone! > > >I am discouraged, I had pinned my hopes of being able to get the Deep Brain >Stimulation STN before I hit the wheel chair level, But time is running out >and I used > > a wheel chair for the first time (except for flying) to attend a concert. I >decided unless I was willing to be a hermit, I was going to have to ask for >help. It was hard to have someone push me around, but safe from freezing in a >crowd of people! Having had PD for only nine years, it seems premature to be >in a wheel chair yet. Has anyone out there gotten to that stage so early? > >Back to the DBS-- I think there is no use in hoping for FDA approval on this >procedure as the HMOs ,the drug companies, and Medicare are surely fighting it >because of the expense. As far further research being needed, it has been >used in France for some time. Why do we always have to prove again what some >other country has already proved? > >I noticed my generic Sinemet was made in Jerusalem. What kind of approval did >that have. How do we know our generic drugs are not made by some terrorist >country? It sure would be an easy way to knock off a few people! > >I hope I'm wrong in my cynicsm and that I haven't ran on too long. Just give >it some thought, I value the input of this group. > >Thanks---- >Ruth Clark 67/9 jjjane http://www.parkinsonalliance.net/medical/palross/palross.htm