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> Bruce Anderson wrote > Subject: A Prayer and a Wing - a Personal Request. > > Meaning i am praying someone will take me under their wing for a day or 2. > I am seeing a new Movement Disorders Specialist tomorrow at a large clinic > associated with a hospital: > > He comes highly recommended > I need some changes badly > I will get 20 minutes with the man every 4 months > And, while my knowledge of PD is 10,000% better having been a part of > this List for the past 3 1/2 years, i feel woefully inadequate compared with > so many of you when it comes to the issues of medications, and dosages, > etc. There has been so much info on these matters over the years that my > pea-brain method of dealing with it all has been to save what appeared to be > the more useful posts to use to prep myself for just such an event as i am > going to have tomorrow. > So now i have a big stack of paper. > A couple of years ago i would have had no trouble at all coming up with > a list of questions & medication suggestions for him. Now i am just feeling > lost. > Do you suppose that someone out there who considers him or herself a > real expert on the meds could come up with list of questions for this doctor > if i provided you with a little background? > If someone is game you might want to do this on-List as i can't be the only > one with this real problem......I could follow up tomorrow night and you > could perhaps critique the answers i get ?? > I take 5 25/100's of Sinement/day, trying to evenly disperse 1/2 tabs > throughout the day. > 2 Eldypryls, 3 1.5 mg tabs of Mirapex per day. I have been on Mirapex since > April & it has not helped. > Before that i was on Permax. All that is left to try, i guess is Requip > and Tasmar (sp?). > My main problem is mobility. I am rapidly losing my ability to walk. > I know i am asking a l to. Thanks in advance. > > Hello Bruce, living in the UK sometimes means that I fail to read the more urgent mail from the USA in time to be useful. I expect that as you read this you will have seen your new specialist, who will have proposed some sort of change. Your immediate need will be to get some reassurance that the proposals make sense, and that is in no way intended to be a criticism of the Specialist; it's natural when dealing with your life (because it is as important as that) to want a second opinion. I would be pleased to offer my help for however long it takes to get you going again and will await your response. Whether we do it on-list or off-list I leave entirely to you (the patient). As I think about it I cannot remember the last time we had one of these analytical exchanges about dosages of tablets on the list, so it may be of interest to a number of people. Regards, -- Brian Collins <[log in to unmask]>