Just read your note, sorry I wasn't available to help.
How did your meeting go??? What do you mean you are losing your
ability to walk?
Are you freezing, falling? Can you use a walker? Let me know if I can
help.
M.
-----Original Message-----
From: Parkinson's Information Exchange
[mailto:[log in to unmask]] On Behalf Of Bruce Anderson
Sent: Monday, September 14, 1998 9:51 AM
To: Multiple recipients of list PARKINSN
Subject: A Prayer and a Wing - a Personal Request.
Meaning i am praying someone will take me under their wing for a day
or 2.
I am seeing a new Movement Disorders Specialist tomorrow at a large
clinic
associated with a hospital:
He comes highly recommended
I need some changes badly
I will get 20 minutes with the man every 4 months
And, while my knowledge of PD is 10,000% better having been a
part of
this List for the past 3 1/2 years, i feel woefully inadequate
compared with
so many of you when it comes to the issues of medications, and
dosages,
etc. There has been so much info on these matters over the years
that my
pea-brain method of dealing with it all has been to save what appeared
to be
the more useful posts to use to prep myself for just such an event as
i am
going to have tomorrow.
So now i have a big stack of paper.
A couple of years ago i would have had no trouble at all coming up
with
a list of questions & medication suggestions for him. Now i am just
feeling
lost.
Do you suppose that someone out there who considers him or herself
a
real expert on the meds could come up with list of questions for this
doctor
if i provided you with a little background?
If someone is game you might want to do this on-List as i can't be
the only
one with this real problem......I could follow up tomorrow night and
you
could perhaps critique the answers i get ??
I take 5 25/100's of Sinement/day, trying to evenly disperse 1/2
tabs
throughout the day.
2 Eldypryls, 3 1.5 mg tabs of Mirapex per day. I have been on Mirapex
since
April & it has not helped.
Before that i was on Permax. All that is left to try, i guess is
Requip
and Tasmar (sp?).
My main problem is mobility. I am rapidly losing my ability to
walk.
I know i am asking a l to. Thanks in advance.
B. Bruce Anderson (52, 4)
Schooley's Mtn., NJ
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