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I hate my mother Joyce's (69/1) new diagnosis of SND, but I love her new doctor. Dr. Fazzini (NY) has a Web site that has a contact us section. So far, my sister and I have asked at least one question a day for the past 4 days and have gotten replies with 24 hours. There doesn't seem to be a lot out there on SND and this sort of access is wonderful. I'd encourage everyone to see whether their doctors or centers where they see doctors has this sort of service. (It's almost as good as this list -- NOT). Debbie White [log in to unmask]