Coleen said:
jeesh,, why would the DR tell us to do this and this could
be the sleeping problem?
'Cause there are a LOT of PD-ignorant physicians out there in the big world of
medicine who continue to prescribe potent and often toxic PD-drugs without
having a CLUE as to what havoc those drugs can cause to an individual who they
MIS-prescribe (ill-prescribe? Screw-up?) <well you get the idea, right?>
or otherwise incorrectly advise.
This problem is further compounded by some pharmacists who follow the MD's
directions blindly without ever THINKING about the prescribed drug and what a
negative impact it might have on the patient's life (and that of the
caregiver, as well!) as they fill a prescription.
There's one defense the Parkie and caregiver can take against the above, and
that's to learn everything they possibly can about this steeeenkin' disease
and PD-related drugs, and based upon that knowledge, THINK and QUESTION before
taking any newly prescribed drugs.
From personal experience, even a Parkinson's-drugs-savvy-and-questioning
individual can STILL be prescribed drugs which are contra-indicated for PD
patients, and not be familiar with that drug's negative effect just because
there are SOOO many existing and NEW drugs in the medical marketplace.
In fact, how could ANY lay-person know - no matter HOW PD-knowledgeable they
are - keep track of all the contra-indicated drugs, when their doctor and
pharmacist are unable to track that type of drug and disseminate the
information to the patient???
Barb Mallut
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----------
From: Parkinson's Information Exchange on behalf of Coleen Pettit
Sent: Saturday, September 26, 1998 9:36 PM
To: Multiple recipients of list PARKINSN
Subject: Re: information
I also note from your message that you take Eldepryl at midday, this goes
against what my Neuro' told me, and my own experience, which is that it
should only be taken in the morning as it can cause sleeplessness if taken
later.
I have a question...didn't your neurologist give you the perscription of
eldypryl to take twice a day...morning and evening?
Bob was told to take his at those times adn he does have lack of sleep
sometimes..early in the morning...he says he is just not tired..maybe that
is the problem?? jeesh,, why would the DR tell us to do this and this could
be the sleeping problem?
thanks, Coleen :)
I feel better now than I have for a long time, which is mainly due to the
fact that I feel I have found the optimum dosage .
Regards,
Regards,
Nigel,
Age 43, diagnosed 1989, Taking Madopar, Cabaser, Selegeline,
Amantadine, Amitriptyline.
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