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Gina, you are having EXACTLY the same condition/symptoms I am. When I saw my new hotshot MD neuro (nothing derogatory intended) last week he said it was NOT med related. He is going to send me to a vascular specialist but first wants me to exercise. We have a treadmill so he wants me on it 3x per day, 10 minutes each time for 3 weeks. If no improvement- another specialist.! Mine started about 6 months after I first started on Permax, and fairly soon after my Permax dose was increased significantly. I went to Mirapex in April and it abated a bit but I still have all the symptoms you have. REAL pretty! -----Original Message----- From: Gina Cass <[log in to unmask]> To: Multiple recipients of list PARKINSN <[log in to unmask]> Date: Wednesday, September 23, 1998 3:03 AM Subject: Re: SWELLING IN LEGS AND FEET >Hi Gerry & Brig: Doctor has taken me off the Permax and started me on >Mirapex. It has been 4 days now since being on Mirapex and my legs look like >chopped liver. They are a bright red still, very dry, skin shiny and >stretched until no stretch left. There is no give in the skin. The dimples >in my knees are gone, there really is not knee cap to see. Bending down or >kneeling are out of the question. At the end of the day, the legs are like >walking on stubs. They are hot to the touch, but then all of a sudden the >feet and toes turn cold. I have been in contact with the doctor in Chicago >and first was reduction of Permax (did not help), second was phase out Permax, >phase in Mirapex. Mirapex is doing what it should for PD, but the >legs/ankles/feet are still a mess, worse then before. > >All I know, is that I am very tired of trying to walk at all now. It is a >nightmare that is beginning to have no end. I trust the doctors now and >believe they have my best interest at heart. I am researching the other meds >in the realm to see if maybe one of them may be causing some problems. >Lithium I have taken for about 8 years now, but some of this sounds like >Lithium overdose. Patience is wearing off, as well as tolerance. The >Acceptance part is lost in the corner as the problems crop up. >Since I have never been treated for PD and don't know the ins and outs, if you >have had similar problems, could you please let me know if they were med >related due to PD or some other med. Or was it PD itself? I usually am a >Half-Full type person but I am getting very tired. I don't sleep, my legs are >horrible, being chased by Hallucinations, being Paranoid by anything, No >transportation, tremors, head bobbing, etc. I am tired and worn out, needing >a good word, to be pushed up the ladder one more time. To at least see the >leg thing through. And continue this battle for the next hurdle to come. But >by morning I will probably be back to my normal talkative self. >I am curious as to if many of Parkies know what brought PD on them? Or if you >just have a hunch? Are you still hopeful of a cure? How long did your meds >take to straighten out so they worked and gave the least amount of side >effects? >Is your doctor local or did you have to go to another town to get good medical >care? >What side effects did you have when you started? What were the symptoms? >I really haven't asked much because I didn't want to appear stupid. I don't >believe anyone is stupid, we just lack knowledge. If you have any other >information for me that may help, please post to me. I am searching for >answers that are coming very slowly or sometimes not at all. I need personal >knowledge. Thank you for your answers, I am scrambling to stop the legs. >TTFN >Gina