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Helen jc - mine itched like the dickens at first, but that abated some, along with the swellling. Now ( 4-5 MOs after this started) just some swelling and awful discoloration - although the tread mill may actually be working already! Tough on the back, tho. Oh, Woe is me. (who said that?) B. Bruce Anderson (52, 4) Schooley's Mtn., NJ [log in to unmask] -----Original Message----- From: Bruce Anderson <[log in to unmask]> To: A. Parkinson List <[log in to unmask]> Date: Wednesday, September 23, 1998 10:01 PM Subject: Fw: Re: SWELLING IN LEGS AND FEET > >Gina, you are having EXACTLY the same condition/symptoms I am. When I saw >my new hotshot MD neuro (nothing derogatory intended) last week he said it >was NOT med related. He is going to send me to a vascular specialist but >first wants me to exercise. We have a treadmill so he wants me on it 3x per >day, 10 minutes each time for 3 weeks. If no improvement- another >specialist.! > >Mine started about 6 months after I first started on Permax, and fairly soon >after my Permax dose was increased significantly. I went to Mirapex in >April and it abated a bit but I still have all the symptoms you have. REAL >pretty! >-----Original Message----- >From: Gina Cass <[log in to unmask]> >To: Multiple recipients of list PARKINSN <[log in to unmask]> >Date: Wednesday, September 23, 1998 3:03 AM >Subject: Re: SWELLING IN LEGS AND FEET > > >>Hi Gerry & Brig: Doctor has taken me off the Permax and started me on >>Mirapex. It has been 4 days now since being on Mirapex and my legs look >like >>chopped liver. They are a bright red still, very dry, skin shiny and >>stretched until no stretch left. There is no give in the skin. The >dimples >>in my knees are gone, there really is not knee cap to see. Bending down or >>kneeling are out of the question. At the end of the day, the legs are like >>walking on stubs. They are hot to the touch, but then all of a sudden the >>feet and toes turn cold. I have been in contact with the doctor in Chicago >>and first was reduction of Permax (did not help), second was phase out >Permax, >>phase in Mirapex. Mirapex is doing what it should for PD, but the >>legs/ankles/feet are still a mess, worse then before. >> >>All I know, is that I am very tired of trying to walk at all now. It is a >>nightmare that is beginning to have no end. I trust the doctors now and >>believe they have my best interest at heart. I am researching the other >meds >>in the realm to see if maybe one of them may be causing some problems. >>Lithium I have taken for about 8 years now, but some of this sounds like >>Lithium overdose. Patience is wearing off, as well as tolerance. The >>Acceptance part is lost in the corner as the problems crop up. >>Since I have never been treated for PD and don't know the ins and outs, if >you >>have had similar problems, could you please let me know if they were med >>related due to PD or some other med. Or was it PD itself? I usually am a >>Half-Full type person but I am getting very tired. I don't sleep, my legs >are >>horrible, being chased by Hallucinations, being Paranoid by anything, No >>transportation, tremors, head bobbing, etc. I am tired and worn out, >needing >>a good word, to be pushed up the ladder one more time. To at least see >the >>leg thing through. And continue this battle for the next hurdle to come. >But >>by morning I will probably be back to my normal talkative self. >>I am curious as to if many of Parkies know what brought PD on them? Or if >you >>just have a hunch? Are you still hopeful of a cure? How long did your >meds >>take to straighten out so they worked and gave the least amount of side >>effects? >>Is your doctor local or did you have to go to another town to get good >medical >>care? >>What side effects did you have when you started? What were the symptoms? >>I really haven't asked much because I didn't want to appear stupid. I >don't >>believe anyone is stupid, we just lack knowledge. If you have any other >>information for me that may help, please post to me. I am searching for >>answers that are coming very slowly or sometimes not at all. I need >personal >>knowledge. Thank you for your answers, I am scrambling to stop the legs. >>TTFN >>Gina >