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Bruce, I have been keeping up with the list for several weeks now. Your message asking for help with questions for your new doc prompted me to jump in. I have an appointment Wednesday with one of the more prominent docs in Houston. I have seen him once before and he ran tons more tests to rule out any other possibilities and now he is ready to give me his spin on medications, etc. My PD was diagnosed 3 years ago at 45. I am taking Mirapex, Selegiline & Cogentin now. In combination, they are giving me fairly good relief. Anyway, what I want to know---what were your questions to the new doc? Our first visit was off all medication so he could see the base line on the PD. I was so unnerved by how severe the tremors and rigidity had progressed since I had begun medication. I wasn't thinking too clearly and barely did more than answer his questions. I would appreciate your help in seeming a little more coherent this time. Rhonda -----Original Message----- From: Bruce Anderson <[log in to unmask]> To: Multiple recipients of list PARKINSN <[log in to unmask]> Date: Sunday, September 20, 1998 9:55 PM Subject: Prayer&Wing Belated Thank You/Unsung Heros. >Well, I had my appointment last week, with my new MDS neuro at Robert Wood >Johnson Hospital's Neurology Dept. Thank you Margaret Tuchman! The new >doctor is terrific, or so he seems. First PD specialist I have had who >listened. He's putting me on Tasmar - as soon as I can get a blood test to >see if my liver is up to this drug; so I will be on Sinement, Eldypryl, >Mirapex and Tasmar. He said 6-8 weeks & if no improvement in my mobility he >said we would go for with Mirapex and either BACK on Permax or try Requip >next - my choice. He said a lot of PWP do well on Permax after having left >it for Mirapex. > He made it clear he wanted me to keep him informed by phone and didn't >think the 4 months between appts would be a problem. He answered all the >questions I had - most of which were suggested by YOU kind folks! > So I am going to do some thing I did not expect to do - give this guy >another try! > Which brings me to my next topic - Thank you's. I got over 20 responses >to my one day request for help in handling my appt with a new neuro the next >day. I was panicking that I was not going to know what to ask or to >volunteer to help this new doctor figure out how to help me. About 2/3 of >the List members responding were the well-informed backbone of our forum. >Part of that [international] group which know a lot and try to help whenever >they can. Surprisingly I got 7 or 8 responses from folks who never post. >Just as knowledgeable and as helpful as the regulars! One guy, a "52/9," >had just come back from a trip to Kodiak fly fishing for salmon!! The only >problem he had was he went in the drink twice & got water in his waders and >the water is COLD in Alaska! > His note was a big upper for me. He gave some med. advice [thought >perhaps my Sinement intake was too low] and gave me a GREAT "give em hell" >talk. These are the unsung heroes of this Parkinson List. > There were others too. If any of you ever need help just ask here! >Provide all the details and you'll be amazed at the quantity and quality of >what is offered to you. >